Eric,
I have an appt. at Shand's on May 20th. I don't know if there's anything available for me, but maybe there will be something... I'm just going to keep on following up the different avenues.... It's been 10 mon. since I was taken out of the trial. Physically, I'm not doing all that bad, all things considered. Yea, my LFT's are still elevated, but not extremely so. I have NO IDEA what my viral load is because they don't run it when I'm not treating, or getting ready to start treatment. I still get the ultrasounds and AFP every 6 mon. because the G.I. requests that I do it. I really wish that Vertex would come back and say, Prove 3 Group C people - guess what we've modified the original protocol and we're going to offer you an opportunity to treat with all 3 drugs. But, I don't think that they're going to do that. I was told no, as far as participating in the next phase of Vertex trials. Susan
How are you doing these days? Are you considering any further treatments now?
Be well,
Eric
Once again, I'm very happy for your success at clearing! May it continue on. Happy Sailing.
Susan400
I was undetectable by week 2.
I think many doctors now consider 12 weeks to be a SVR except for those with cirrhosis.
Eric
Eric,
Wholly Moley!!! I missed this!!!
Wow Eric...this is very good news! Do you know exactly when you first became UND? RVR, the sooner the better, is best.
OK...now you need to hunker down and wait for 12 week post tx. As you probably know people who RVR, UND at post tx week 4, UND post tx week 12....almost ALL go on to UND 24 week post tx which is SVR!!!
Happy sailing!
miked
Eric,
Wholly Moley!!! I missed this!!!
Wow Eric...this is very good news! Do you know exactly when you first became UND? RVR, the sooner the better, is best.
OK...now you need to hunker down and wait for 12 week post tx. As you probably know people who RVR, UND at post tx week 4, UND post tx week 12....almost ALL go on to UND 24 week post tx which is SVR!!!
Happy sailing!
miked
There are too many to name, but I want you all to know how wonderful I think you are.
There are certainly days when we all feel it is impossible to keep going, but the forum provides a sense of contact with other people that share the experience; they can provide support in a way that treatment naive people just can't do no matter how much they love us.
Eric
Way to go bro! That's fabulous news and it's just a hint of things to come. You've got it in the bag dude, better start planning out a serious sailing itinerary because the tradewinds are going to be blowing your way for the rest of your life. Couldn't have happened to a nicer guy too, congrats man you EARNED it - in spades! And keep playin' that VRTX too, that'll keep ya in diesel fuel and sail cloth! ;-)
Eric,
Congratulations!!!!!!!!!!!!!!!!!!! I am feeling more confident about my own situation as I watch yours. Thanks for sharing your progress. I am in my last week starting Thursday...
Thank God!
Scott
You make anything seem possible.
Go Eric,
Go Telaprevir!
The very best to you
frijole
Congrats!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Like Jim said: Andiamo is SVR (Sailing Very Regularly)!!!
I am absolutely certain that you're on the road to SVR. You surely earned it. Here's to an ocean full of happiness!
pigeon
Awesome news!!!! I am so happy for you.
What a journey you have been on. Thank you so much for sharing your sailing tales, and for your inspiration! =)
Blessings
Great news, Good luck.
Jack
Doesn't everyone agree that this is THE BEST news of THE YEAR ????? You to Trish !I think everyone should post again and again and make these guys cry with happiness..I am sitting here thinking how this disease makes our minutes in life seem so hohum, no matter what you do, who you see, ALWAYS hep is always there. Just to know that these guys have made it this far and know that clearing this devil is just a matter of the LAST shot or dose of riba. You guys will clear this demon! I am going to go right now and address a letter to Jesus .In Jesus' Name, 4-27-08.First of all, Thank you God for giving us all the technology to have the medicines we do have to fight this dreadful beast.
I'm again asking you give us "ALL" the energy, strength, and knowledge to fight this beast.We all need to be consoled, meaning, public knowledge that this disease isn't because we've been bad, just unlucky.Put your hands on Trish and Andiamo and clear them forever, as well as all of us.Help everyone clear their minds of brainfog so we can make good decisions.Monday morning when it's time to begin the work week let all of pull the bandaid off and feel good.Let us keep our hair.Help our hair stay intack.God I hope this doesn't sound silly to you as I sit here and tears start to fall because I know my biopsy on Friday was just a start for me and some of these guys on this forum have been fighting to stay alive.I'm praying for you guys with all I have and hope everyone hears good news as the year keeps rolling by.Thank You, Jesus Amen,Tammy
P.S.I'm putting this letter in GOD"S BOX.meaning it's now on his shoulders and you can forget about it as long as you want when you need to because He will carry us when we need him to.God Bless you Trish and Andiamo, again and again , CONGRATULATIONS
Keep up the good work....wishing you all the best! GingerB.
Sweet! First UND of many to come. Congratulations on your success, you certainly didn't give up easily against this disease, right?
Hugs,
Bug
Fantastic news my friend. You deserve SVR, as you are an inspiration to the hepper world and a great supporter to everyone. Well done. Regards Emi
What are you going to do with yourself? You've been on treatment half your life. You are going to have to retrain everything!
great news ,hope you stay healthy and und.god bless
Looks like smooth sailing ahead - so happy for you!
also posted a congrates to you on Trishes UND thread!
You are my hero....
Mikki
congratulations - congratulations - congratulations - congratulations - congratulations - congratulations -congratulations -CONGRATULATIONs!
(the first 7 were just dress rehearsals)
CONGRATS!!!! I just checked in here today after a long disappearance and I'm so happy to see your news. You give so much to this board with your kindness and great attitude- it's wonderful to see that you're UND.
Big smiles and high five,
Dee
Congratulations!!! thats wonderful news . so happy for you.