Aa
Stiff painful joints.... arthritis
About two weeks ago I posted concerning stiff fingers and joint pain... I went to the doc and had a whole lot of blood work done and everything came back either in normal range or negative. So I do NOT have, OA, RA nor gout.
He diagnosed me with something they call Reactive Arthritis here in Denmark (caused by hep c). He explained to me that it usually is temporary and should go away during or after treatment. He said that one usually administers RA meds for this, but he would prefer that I don't take anything, as I do not have much pain at all. He gave me a referral to an acupuncturist. My private insurance covers part of acupuncture treatment, if it is performed by an MD and one is referred by the GP.
So, anyway... I walked out of his office one happy woman, not to have some additional krappy disease on top of this dragon.
When I talked to my hepatologist about this last week, she said that I should not be astonished, if all the blood work came back fine... She also suggested that it could be this Reactive Arthritis caused by hep c.
Marcia
He diagnosed me with something they call Reactive Arthritis here in Denmark (caused by hep c). He explained to me that it usually is temporary and should go away during or after treatment. He said that one usually administers RA meds for this, but he would prefer that I don't take anything, as I do not have much pain at all. He gave me a referral to an acupuncturist. My private insurance covers part of acupuncture treatment, if it is performed by an MD and one is referred by the GP.
So, anyway... I walked out of his office one happy woman, not to have some additional krappy disease on top of this dragon.
When I talked to my hepatologist about this last week, she said that I should not be astonished, if all the blood work came back fine... She also suggested that it could be this Reactive Arthritis caused by hep c.
Marcia
I only took two Paracetamol about 1 hour ago, about 7 hours after the shot, as I was getting some muscle pain. Am feeling a bit grouchy and a bit unwell, but really not worth mentioning it. I think I'm gonna go to bed soon. It's only 22.20 here, but I've had a long day with only a 10 minute nap today.
It's amazing that I went through the day like this... I was prepared for the worse, but nothing really happened this time.
Marcia
It's amazing that I went through the day like this... I was prepared for the worse, but nothing really happened this time.
Marcia
The riba won't cause you any problems for a while...did you take any tylenol with the shot or just wing it? If you do start to feel odd take it right away. I took two with every shot and only had a few fevers (and you know them when you get them for sure) but not until about week 30.
The first shot I just went into a coma like sleep for 18 hours - I think I worried myself into it.
Good luck - hopefully you'll find it's MUCH different than all of the reading in the world could have told you. That's a good thing.
deb
The first shot I just went into a coma like sleep for 18 hours - I think I worried myself into it.
Good luck - hopefully you'll find it's MUCH different than all of the reading in the world could have told you. That's a good thing.
deb
Thank you so much Elaine.
So far so good. Since about 1 hour after I had the riba 7 hrs ago, I have been feeling kind of like I'm on a low dose of valium and nothing else. Took the shot 4 hours ago. And still nothing. Maybe I'll be lucky this time.
I It is so good to see you posting... I think of you quite often..
Hugs, Marcia
So far so good. Since about 1 hour after I had the riba 7 hrs ago, I have been feeling kind of like I'm on a low dose of valium and nothing else. Took the shot 4 hours ago. And still nothing. Maybe I'll be lucky this time.
I It is so good to see you posting... I think of you quite often..
Hugs, Marcia
Very well said. You hit it right on the spot there with your last sentence! This illness is quite amazing. It creates all kinds of emotions incl fear and uncertainty, but as soon as one has a certain amount of knowledge, it turns into courage, and bad a§§ ready to fight attitude... It's amazing what happens in this forum. It builds up the strength in people and it is build up by the help of everyone who has walked this road or is currently walking it.
Everyone brings in a little (and some a lot) of their experience and knowledge. I'm amazed every day and thankful that all of you exist!
Marcia
Everyone brings in a little (and some a lot) of their experience and knowledge. I'm amazed every day and thankful that all of you exist!
Marcia
I'm still trying to learn all that I can about some of the ailments that HCV can cause and how some of them may explain some of the symptoms I've had. Up until I got the HCV dx late last year, things got ruled out (like arthritis) but nothing else was explained or treated. I was very surprised when the Hepa tossed out cryoglobulinemia after I told him I was suffering from severe joint pain that was mysteriously going away as I progressed further into tx. I read more about Reactive Arthritis after I read your post and learned they are not the same, but I learned something new! After living in fear about the illness and then the tx, it feels good to finally have the courage, information and support to get through whatever may come!
Thanks for your comment... I don't think it could be cryoglobulinemia, as there are no cryoglobulins in the blood. There is nothing at all in my blood. It seems to be plain HCV-associated Arthritis, or also called Reactive Arthritis caused by HCV (as my doc explained it) Been reading up about it and found some interesting stuff.
Anyway, I'll see how it goes.
Marcia
Anyway, I'll see how it goes.
Marcia
My additional DX of RA factor on top of another autoimmune Dx of Hypothyroidism made me decide to TX. The Rheumatologist would not even TX me he said it was from HCV.
It hurt to make a fist in the AM and I would get stiff if I sat for more than 20 min. It is actually a little better at the end of the week but 3 days post shot it flares. Diclophanic seems to help me. Just another med.
A friend of mine that was only on TX for 3 months said his hands were better after.
Now the rash on my hands bothers me more than the old stiffness in the joints. Swap one irritant for another.
It hurt to make a fist in the AM and I would get stiff if I sat for more than 20 min. It is actually a little better at the end of the week but 3 days post shot it flares. Diclophanic seems to help me. Just another med.
A friend of mine that was only on TX for 3 months said his hands were better after.
Now the rash on my hands bothers me more than the old stiffness in the joints. Swap one irritant for another.
Yeah, my RA office called and said,"Hi, (insert my full name here) you definately have hepitatis C, your husband will need to be tested. OMG your level is 2million!!"
All this while she was sitting in front of the open window to the waiting room full of people.
So, I felt compelled to go and explain privacy laws to them-good practice for weilding riba rage responsibily!! LOL!!!
All this while she was sitting in front of the open window to the waiting room full of people.
So, I felt compelled to go and explain privacy laws to them-good practice for weilding riba rage responsibily!! LOL!!!
How beautiful to wake up to a lot of positive and loving posts.
Love y'all.
Let's beat this thing together!!!!!
Marcia
Love y'all.
Let's beat this thing together!!!!!
Marcia
"went to the RA doc and she found HepC instead. (yay, thanks)"
Hey, I know that story! LOL! After the RA's office was kind enough to call me to tell me that I had Hep C (while at work, no less), I was quickly referred off to GI. Never did find out what the pain was or why. Then the other day I sort of noticed that the pain was very mild. That's a side effect I definitely can live with happily for a change!
Hey, I know that story! LOL! After the RA's office was kind enough to call me to tell me that I had Hep C (while at work, no less), I was quickly referred off to GI. Never did find out what the pain was or why. Then the other day I sort of noticed that the pain was very mild. That's a side effect I definitely can live with happily for a change!
Hi Sis!
Just wanted to let you know that it was my aching joints in my hand that led to my hep diagnosis--went to the RA doc and she found HepC instead. (yay, thanks)
Same thing...no RA, OA or anything else...she just said sustained inflammatory response from the hep.
Since I started tx, no pain.
You're right...it's just HepC.....we're on our way to being cured!!!
5 days till the BADSS are together!! LOL!
Love ya-Izzy
Just wanted to let you know that it was my aching joints in my hand that led to my hep diagnosis--went to the RA doc and she found HepC instead. (yay, thanks)
Same thing...no RA, OA or anything else...she just said sustained inflammatory response from the hep.
Since I started tx, no pain.
You're right...it's just HepC.....we're on our way to being cured!!!
5 days till the BADSS are together!! LOL!
Love ya-Izzy
Thats very good news, and there is a name for it Reactiv Arthritis
caused by HCV.
And it will go away during or after treatment.
I wanna add something prepar your self that it can get a lot worse during tx as it did for me, but it did went away as in my case 3-4 months post treatment.
Now on second tx I`ve got some back but it is far from what it was before first treatment.
H20 LOVER confirmed it also.
Getting rid of all that stiffnes and ache in the bones almust every where in the body,and as I´ve had it for decades of years makes it all worth it.
I didn´t took any meds for it during tx either.
ca
caused by HCV.
And it will go away during or after treatment.
I wanna add something prepar your self that it can get a lot worse during tx as it did for me, but it did went away as in my case 3-4 months post treatment.
Now on second tx I`ve got some back but it is far from what it was before first treatment.
H20 LOVER confirmed it also.
Getting rid of all that stiffnes and ache in the bones almust every where in the body,and as I´ve had it for decades of years makes it all worth it.
I didn´t took any meds for it during tx either.
ca
This sounds like cryoglobulinemia. I only just learned about it and have been trying to find out more. Apparently it attacks the joints in chronic hep c patients. Haven't gotten any info yet, so I'm no help.
I know, only Hep C, none of the other stuff, it feels so good...
Thanks Pam, I'm praying for your SVR....
Marcia
Thanks Pam, I'm praying for your SVR....
Marcia
Boy do I know that one happy woman feeling....all I had was hep c.....no Hep a, hep b, HIV, RA, lupus, autoimmune, good gallbladder, spleen, pancreas, no signs of cancer.....only Hep C.
Good news indeed! We think we have it bad, but at least some can be cured while other diseases are chronic forever.
Hoping you feel better though. I am 3 months post and feel fabulous! I had achy joints during treatment, but nearly gone.
You start treatment soon right? Keep the positive attitude it will take you far!
Pam in Florida
Good news indeed! We think we have it bad, but at least some can be cured while other diseases are chronic forever.
Hoping you feel better though. I am 3 months post and feel fabulous! I had achy joints during treatment, but nearly gone.
You start treatment soon right? Keep the positive attitude it will take you far!
Pam in Florida
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