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Avatar universal

WATCHFUL WAIT APPROACH ~ ;)

Well, it is a new me ~ No more "Eye" (that's especially for a childangel ;) )... just 'me'!  The eye symbolized 'searching'.  And I've done much of that!   A decision has been made.  I'm totally comfortable and at peace with the 'Watch and Wait' Approach.  

I met with the specialist on the 28th of March.  My liver enzymes are within normal levels and my latest vl reading is 12,047 (dropped from 87,000).  You may remember the biopsy was basically unremarkable at 0-1.

Every aspect of dealing with the virus - waiting, SOC treatment, Accelerate study, watching trials, etcetera - - were all explained, or at least touched upon.  He understood I leaned toward waiting, and expressed he thought it wise that I've taken the time to understand the disease and the options, and confirmed there was wisdom (in my case) in waiting for better treatment; although, taking the current SOC treatment offered excellent odds in putting the whole thing behind me.  I've chosen to wait and this peaceful feeling tells me that is the right decision.

Before visiting his office I took the time in printing archive on others' health regimes (those afforded the opportunity to wait to see what future treatment holds), as well as many of HepatitisResearchers suggestions - recommendations.  The specialist took the time to look it over and told me he had no problems with it.

Thank you for your support, friendship, heartfelt private messages and beautiful personal stories.  When I made the entry shortly after I arrived here, that Medhelp Rox Sox, I meant it!  The collective wisdom and humor makes this place an incredibly unique, interesting, and enjoyable place to enter.  I've learned so much and believe I have made friends in the process.

Peace,

Anwaar
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Avatar universal
I'm sure it was a hard decision for you or anyone in your shoes...you are young and healthy so to wait and see if something new and improved comes alone is probably a good choice for you!  I wish you the best for a healthy and happy life!

Darla
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Avatar universal
This is great.  We must stay in touch.  Abstract photography takes a creative imagination and from what I understand, it is not alway as easy as it appears and a real art form in its own right.  Her video journalism professor taking such an interest shows she has talent.  Even better if she takes what she loves doing and make it her life work.  For me, it is only an enjoyable hobby that keeps some balance in my life.  Bravo for her!
Helpful - 0
412873 tn?1329174455
Thanks so much!

I am not sure how to describe her focus...she has a really neat way of taking something ordinary and shooting from a different angle and making it look abstract.  I will post some of her photos later today after I get off work.  

She is photo editor of her year book and her video-journalism teacher has taken her under his wing and is teaching her alot.  I will mention your friend to her and maybe give her some new ideas!

Have a great day!
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Avatar universal
Yes, I NOW remember our 'conversation'... forgive me, Izzy, I am still attempting to get things straight with my friends here.  Hopefully, your daughter will test clear, never having to be placed in the position to treat or not.  What is her focus in photography?  Nature? people?  A close personal friend of mine, I sometimes travel with, focuses on abandon buildings.  Her talent is phenomenal (and a few pieces published).  I am an unskilled amateur with much to learn.  Even as a hobby, if the desire and love is there, one begins to look at their surroundings in whole different perspective. I wish you the best in your decision to treat, Izzy.  
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412873 tn?1329174455
You are correct in that my biopsy was good.  I am not waiting-I will be treating. I'm (much) older than you at 45.

We do have in common the thought about waiting to treat-as my daughter is not too much younger than u and needs to be tested in case she got it from me.  I would for sure want her to wait if she were in your/my shoes. I think we "spoke" about that a while back and that is why you may think I was waiting.  Not me, definately her!! :-)

I do think you both have a common interest in photography and are both quite good!

As for the pictures, I just click on the photo tab on by profile and hit browse. Then it uploads. You do have to be logged in...that is the extent of my knowledge!  

Yes, I do love that princess-aka-dog.  The real Isobella is tiny--2 lbs, 2 yrs old. And yes-very sweet!

Izzy

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Avatar universal
Elaine.. hugs back at you!  You always know the right things to say. Thank you!

Isobella!!  You, too, have a good biopsy.  If memory serves me well, and please correct me if I'm incorrect, you are waiting also?  This is powerful treatment and the specialist acknowledged there's wisdom in waiting if we can afford to.  

On a personal note, I noticed your photos under your 'photo' section.  I understand how to place a photo in my 'journal' but not my 'photo' section.  There were several attempts and failed each time.   I loved that precious dog... he makes that chair look so BIG... lol..... very sweet.
Helpful - 0
412873 tn?1329174455
It is always good to find that place where you are comfortable and at peace with your decisions an  I am so glad that has happend for you and wish you all the best in every thing.

Isobella

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Avatar universal
Thank you ladies...

Deb, you will always have a special place in my heart as you were one of the first to reach out to me.  You're a very interesting woman and it has been a pleasure in any of our communications... and no, I won't forget about you or anyone here and will stop by from time-to-time.

Meki... I will mostly keep it on the back burner and just 'live'.. (wisely, of course) and yes, I will calendar checkup, etc.   .. and much 'love' to you too  ;)
Helpful - 0
217229 tn?1192762404
Each person must decide his or her own fate.

I'm with you --- as long as you promise to keep a watchful eye on any changes ok?

A lot of folks die WITH HCV --- and not because of HCV.

So for some the watch and wait is an ok thing to do.

Much love - and luck - and hope!

Meki
Helpful - 0
Avatar universal
I have been thinking about you, so glad to hear from you!

I am also glad you found peace and  came to a decision.  

You were one of the first people I met on this board and I always think about you and pray for you.

You have a beautiful peacefull spirit.

I do hope you keep in touch, do not eb a stranger, you have much to offer many of us also!

Best Always

Deb


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