after a week of no procrit, hemo down 1.3, Dr says continue, without procrit, I say use the procrita

[headshop]

My nurse just called about my bloodwork with my dose of riba upped and procrit discontinued for a week, She said hemoglobin had dropped from 12 something to 10.7 according to the doctor and I don't care what the numbers say, I can feel the same symptoms not as bad yet, but can feel it them on the way.

I can see where this is going, I get down to 9 or so and after being miserable they start me back on the procrit.

I really, really, don't won't to go through that again and feel it is unnecessary, this is the same dr that filled out my disability for my retirement that made it sound like we just have a cold when going through tx.

I am thinking that I am going to continue the upped riba, and do the procrit injection also.

Any opinions or experience on this is welcome.

Peace and Health

[can-do-man]

by indyjo


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indyjo
Member since Feb 2003  



, Jul 27, 2008 05:40PM
My nurse said take the day before peg. Says it "won't work" with any other schedule. Don't ask me why

[can-do-man]

by jmjm530


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jmjm530
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Member since May 2005  



, Jul 27, 2008 01:35PM
I took my Procrit injection right after my Peg injection. Logistically, a lot easier to do it that way because you only have to remember and "set up" once with bandaids,
sterile field (paper towel :) ), etc.  That said, if your Procrit arrived on Monday and your Peg shot night was Friday, then you might want to inject the Procrit Monday so it would start to work sooner. As to maximizing its effect by taking it in some relationship to the interferon, Im unaware and my medical team gave me no instructions in that regard.

[can-do-man]

Its the Neupogen my hepatologist told me not to take on the same day as the interferon. He said procrit was ok but suggested i take it the day before. If you do some reseach here you will find many that was told that also. Either way you will be fine... Best of luck

[headshop]

I took the procrit last night with the interferon, and do think I will move it to the middle of the week, an actual caring staff member from my present provider , I leave out the care part, told me that the interferon actually peaks on Tuesday if you take it Friday.

[lmr28]

No recommendations on the procrit.  I dropped down below 8 and still did not get it from the PA!  
I did want to comment on this total lack of understanding by the doc's and PA's working with us during this very REAL CHEMO therapy...  I, too, was treated as if I did not "tolerate" it well.  Like I was somehow "over-reacting".  Struggled with pain mgmt.  Was treated- as you said- as if I had a common cold, and was just a big baby.

I am looking at another round, but will definitely go to another provider this time!!!!
hang in there, and do what I couldn't- ADVOCATE, long and loud!!!!!!  Make yourself heard.  or have someone else help- but get YOUR needs met!
good luck,
~lorraine

[lmr28]

No recommendations on the procrit.  I dropped down below 8 and still did not get it from the PA!  
I did want to comment on this total lack of understanding by the doc's and PA's working with us during this very REAL CHEMO therapy...  I, too, was treated as if I did not "tolerate" it well.  Like I was somehow "over-reacting".  Struggled with pain mgmt.  Was treated- as you said- as if I had a common cold, and was just a big baby.

I am looking at another round, but will definitely go to another provider this time!!!!
hang in there, and do what I couldn't- ADVOCATE, long and loud!!!!!!  Make yourself heard.  or have someone else help- but get YOUR needs met!
good luck,
~lorraine