Didnt think all this would happen so early in tx?

[charm27]

Im so bummed out I cant even believe Im typing a post to complain about what I knew would happen, didnt expect all this till further down the road. I dont know.
My throat and ears are not as bad since taking the antibiotics day (took 3 antibiotics already), however the pain and soreness is still 24/7 just not as severe. Just got up out of the bed and I have so much hair in the bed I was amazed. My head feels so big and my hair is in this little pony.
Had alot of thin black shoulder length hair now I look like tweetie bird! I guess if it was the hair and the fatigue it wouldnt be that bad., but between the throat and ears its making me crazy.
I do have TMJ and it seems its seems the tx has aggravated the ears to the point of no return. I dont have an ear infection as per the doctor. I never had one actually. My eustachian tubes feel like there going to explode. I know the sx of tx come and go, Im just hoping this goes fast Im so uncomfortable .Thanks for allowing me to ***** its NOT like me do so but a constant sore throat and the RIba irribility is making me nuts. Its only 10 weeks so far. ?
I just took a peek out the window and wanted to cry also not like me I feel so removed from the planet.

[charm27]

thanks all for making me feel like things will get better. Since week 7 things just have gotten worse. First few weeks were ok. Hopefullly things will level out again.

[medicmommy]

Hello....So sorry you're feeling so bad...A friend from a forum I found in Hep Central told me...Just remember...If you're feeling bad, the hep dragon isn't too happy either...Here's a baseball bat!  Give your dragon a really good whack in the head! lol...I guess these are the times we endure hour by hour because day by day seems like an eternity...Best wishes...Hope you feel better soon...

[sfbaygirl]

Sure hope you don't have this neuropathy long term. I had the bone, muscle pain and persued tx nonetheless. I still have these problems and know others that do too.  I was a trooper on tx and wanted to continue no matter what. See a rhemy and see what they say.  Achieving SVR is important, but at what cost?  I have fibro and am on blood thinners for life due to tx.  I still relapased.  Check it all out.  SVR isn't worth the post sx long term, unless you are at a 3/4 stage where you have no choice. Just my opinon.

[Boni58]

Sorry to hear about all your tx problems. As you know we started at the same time. I just wanted to let you know I'm still out here rooting for you and all of us. just starting to lose my hair too...................let's go bald together....K.

Bonita

PS I have peripheral neuropathy that's getting worse. Dr says it could become perminant and we may have to reduce meds........I said no way! I am almost half way there.....not changing now. She told me I was a brave women. What the ***k does that mean?????

[sfbaygirl]

I never had that throat stuff, but I had plenty of other sx. After week 12 things seemed to even out a bit. Hope your's do too. I was a couch potatoe most of tx, pains and fatigue, but you will have a few good days. Take advantage of them!  Tx doesn't last forever and you are killing those critters.

If it weren't for this place, I doubt I would have made it as far as I did.  

Wishing you well!
LInda

[beamishboy]

There is absolutely no doubt: TRX SUKS!!!....and you are certainly getting more than yr fair share of sx's...like everyone said:see yr doc,take meds to soothe the savage beasts & take GOOD care of yourself...would ruby slippers be out of the question?..do i really need a question mark(?) after the word question?-obviously yes!.....Goodluck on your yellow brickroad to SVR

[Forseegood]

I hope these creepy sides go soon too...and you'll start getting to a point of better tolerations, which seems to happen often...all the best to you!

[Andiamo1]

Hang in there.  The side effects come and go.

Has you doctor prescribed you anything?  I find Tylenol and sometimes Aleve helps a lot.

Sorry I can't write more, but I can't concentrate enough to compose a sentence these days!  

Just take each day as it comes and try to look for something good to think about.
Eric

[tahoeunicorn]

I had the real bad sore throat also. I used Chloreseptic Spray and would spray it in my throat, felt like it was just one spot just out of reach that hurt so bad, anyways I also used the numbing throat lozenges. I've just really realized that my throat hadn't been hurting lately.  I hope you get to feeling  better soon.

take care
lynn

[charm27]

Talk about crying at the Tide commercial. If I see Peter from Humana dacin one more time I will throw a rock at my TV! lol

He is getting on the RIba nerves big time!


Cuban Pete must be terminated!
DOnt know why he annoys me..

[charm27]

All I can say is your the best. You really ALL are. Jim, Ladywhy, Lauri your not dancin today? JD- Your right!, Linda I hope you feel better soon.

All of you remind me of the tin man, the scarecrow, and so on. When I wake up from this dream you will all be there by my bedside and toto too!!  HAAAAAAAAAAAAAA

Im really crapola thanks for making me smile and the support you guys give are amazing to me.

Charm

[sfbaygirl]

I know this has nothing to do with tx, but I am so angry.  I was clicking my heels Monday and now I am sick with the dam flu again.  My kids are here from Oregon and I am really mad. I wanted to enjoy this time.  As on tx, I could never plan on when I would feel well...things haven't changed.  YUCK  I feel for you and me and feel really sorry for us.  Wahhhhhhhhh.  

lInda

[ladywhy]

What the heck would we do without ya? Really.

[Lady Lauri]

Was signing out to run to store and saw this :{

Sorry dear. Your having the weepy's too and week 10, things are settling in :{
Believe me , you may get up tomorrow and be smiling and happy. It's just so up and down on this. Several days I've gotten so low I worried myself and a few so edgy I couldn't stand being with myself,lol! Two days ago I felt like I was dying! Miserable, weepy, mean all at once. Woke up yesterday and felt great!! While HAPPY for it, I'm thinking 'hey, somethings wrong here, I feel too good!!"
And the hair 'hurts' too :{ No matter how we know it's the least we should worry about. I had a wad on my pillow one morning, did shed a tear. Than not much more tho, just shedding, but I have a lot and only I can tell looking at me, but still hits you.
And when you say "it's NOT like me"....remember, we are not 'ourselfs' on this! I do and have told many " Don't worry ...I'LL be back!"  Just try on days like this to know that you'll have a better day, this is just a bad one. Remember the post where we were talking about weeping at stupid stuff....commercials, leave it to beaver and so on.I cry at everything as it is (emotional stuff) and in tx I cry on a Tide commercial!
Feel better, cry, whine, do what makes you feel better.

LL

[jmjm530]

Sorry about the side effects. Some of us get hit very hard with upper respiratory issues. I was on antibiotics for most of treatment for one thing or another. Don't know if I've already asked this -- but are you seeing a good ENT specialist? They have instruments that can look where other specialists can't.

In my case, for example, the sore throat and many ear and sinus issues were in part caused by Laryngopharyngeal Reflux (LPR), which is a form of upper respiratory GERD (chronic reflux). But unlike reflux, LPR often doesn't present with hearburn so will often get overlooked except by an experienced ENT specialist. The tx btw are PPI's like Nexium and in fact the recommended treatment is double Nexium -- one in morning and one at night -- as single Nexium often isn't enough.

Hope you feel better soon,

-- Jim

[jdwithhcv]

Courage - YES!!!  Doing what you know must be done, even when you're sick and scared, thats courage and you've got it girl.

You know, we don't have a chic disease.  Nobody is "walking for the cure" or "relaying for life" and we don't have a Lance Armstrong out there making our illness mainstream.  If we all had breast cancer we'd be proudly sporting pink bandanas on our balding heads.  Maybe its time to put this plague in the public eye.  How about it, anyone want to put together a hep c ribbon/bandana thingy - screw the wigs, we'll go mainstream!

jd

[charm27]

Jools: thanks alot its been a bad week just waiting for this crappy sx to leave so another one can come...im itching too! Im taking an A/d as welll...not depressed ..just have too much discomfort and pain. Thanks for the warm wishes!!!!!!!!

Ladywhy-Its not just the hair thing its everything as you well know unfortunately. Pain, itching, losing hair, moodiness and the fatigue, and the feeling of an alien imy throat is making me nuts. I know this will pass....thank you God!!
I just hate wearing a wig in hot FLorida but what can you do right??
I hope you are surviving better as well and thank you for your support.
Charm  ( And the beat goes on I guess)

[charm27]

Thanks so much for your hugs and wishes. If it werent for this throat thing it wouldnt be that bad. Im glad I live alone I wouldnt want to burden anyone with all this stuff. I couldnt handle that. Being alone does have its advantages. Courage naaaaaaaa....just doing what I have to thats all and boy it has its moments! Just hopng this throat thing leaves so I can get back on track again, never would think that a throat issue could make a person do miserable. Ok Ive complained enough for one day................just use to being strong not weak.

You have a good happy day and again thanks for your thoughts :}
Charm27

[ladywhy]

"..... I feel so removed from the planet" I understand ....I used the term last night...disconnect...and it is painful. I'm sorry your'e not feeling well and having this infection. The hair thing is definately tough. i see my scalp...but I asked someone who knows I'm txing if she noticed and she said no. I cut it short right before txing.  I feel androgenous. I ordered a wig on e-bay...waiting for it. We'll see how that goes. nygirl convinced me w/her pics! It cost me 34.00 including shipping ...so if it's not tolerable...at least it's not a small fortune lost.  It only weighs 5 oz.
At the same time...I gotta stretch every penney to continue to survive after quitting job. I gotta find work...soon.
This too shall pass...
Hope you feel better sooooon!
y

[jools57]

I'm so sorry you are having such pain. I hope the antibiotics kick in soon. I haven't had the throat and ear sx, but the fatigue and hair loss, I can relate to.
If you continue to feel depressed, don't hesitate to get something for that, as that can make everything worse. I think that has been the hardest thing for me these last few weeks(I'm in week 35/48). That and my face itching like crazy! I've got these little rashes poping up.
Feel free to vent here!! We do understand, and I'm keeping you in my prayers and hoping you get to feeling better, like right now!!!
Hang in there,
Blessings, Jools

[Trish77]

Hi Charm.....I'm sorry you're going through all these very difficult things.  I've got nothing "Ra-Ra" to say this time .. because it sounds as if this is just simply a bloody hard time for you and I have no idea what it's like myself.

I do have to tell you that I admire you.  You live alone and you are facing this will much less day-to-day support than alot of people seem to have here.  You had a really hard time getting started and you knew what it could be like..and you stepped into the fray anyway.  And I admire your courage.  

Your hair will grow back.  That's temporary.  If you were a guy, you could do a combover but even on a guy, they look terrible, so nix that.  Maybe it's time to get a cape for your head too, hm?  Or...something.  And maybe, darlin.....it's just looking at that hair and saying...this means that I'm kicking this viral's azz.  That's what that hair on my pillow means.  It means you're doing a l'il azz kicking there, Charm.

As for the rest of it....I wish I could scoop you up in a big gentle hug and just let you talk it all out.  This too shall pass......and hopefully it won't take much longer.  However, keep seeing your doctor and get relief for the sx where you can.  Be careful of depression setting in from what I keep reading......if you need to do something about that...do it.

Maybe on that sore throat, try gargling with mouthwash, Listerine.  My doc always recommended that instead of medication and it seemed to work pretty well.  Get that yogurt others were telling you about.  

And....if you need to call in a little extra help for awhile....do it.  Whatever it takes, Charm.  Give yourself extra TLC, sweetie.......big doses of it.  Escape into movies for awhile or good books.....funny movies too....feels good to laugh.

Take care, sugar......truly hope you're feeling better soon.

Big hugs to you.....

Trish