Meki, I dunno, I had a hysterectomy 6 years ago--my poor hubby don't get none either Rita. I think the paxil killed the sex drive and it never came back.
I had muscle pain for years, it got worse on TX, & is still pretty bad BUT I have energy now (finished TX end of March) I finally feel like my old self. And hubby wants "his" laptop, like now.
Denise
Headshop it is very serious..and education is key. A positive attitude helps....but the thing for me is humor, it gets you out of yourself....
and you need to laugh, laugh at yourself when you have brain fog, laugh at yourself when your itching like the dog, and panting because your mouth is so dry.....
and now has far as sex drive...hahahahahahahahahaahahahahahaaha
thats a joke,,,,,,,all i can say is my poor husband!!!
peace
rita
Very GOOD to make light where we can.
Life is VERY funny if you look at it... Maybe sometimes you have to do it upside down... But heck --- that's amusing in itself....
I mean - don't you remember the monkey bars... And not CARING if your shirt fell "up"?
LMAO!
Meki
Sometimes you just gotta laugh, you know? I was talking with my daughter yesterday...told her I was starting to lose my hair and she says "that's because you're getting old" .. and it was SO funny...I just laughed out loud. Because we both know why I'm losing my hair and she says THAT without missing a beat. We all know this is serious business .. good to make light where we can.
It is serious, you know life and death stuff, suffering. I know I haven't experienced all this yet, but when I was early in recovery from Alcohol and drug abuse. I had to laught at myself, and hear others laughing also to get through it. I am still laughing. Some people are sicker than others, some humor is sicker than others,
Just get yer ya yahs out and don't tase me bro!
Fiddle with the funnybone!
No energy - dying --- pain --- doesn't matter.... JUST PUT IT IN!!!!! LMAO!
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OMG, that was way to funny, See when i used to post here alot i was always the SERIOUS one, never in the gutter :) I SELF APPOINTED myself the one to TRY and keep the gals here out of the gutter talk. I sure would of had my hands full with you, oh but what fun it would have been. LOL
You crack me up sometimes
Cando does, would, and trys
Leave the handcuffs alone....
Hey --- check it out...
You know the side effect that I kinda hated...
The "knowing" look people give you when you tell them you are Hep C Positive.
They start looking at your arms - and then when they get close enough to you they ask you... "YOU used to do drugs?"
I always laughed at that. Cause anyone who knows me knows better... But it's kinda funny all the same.
I dislike that part --- as if --- somehow you're dirty --- regardless if you did drugs or not... No one is "dirty" like that look.
Yanno?
Anyhow - that's one side effect I could do without.
But the sex drive... Sheesh - have a hysterectomy --- you'll go into overtime. ROFLMAO!
No energy - dying --- pain --- doesn't matter.... JUST PUT IT IN!!!!! LMAO!
Getting arrested.. hm... now that gives me ideas .....
I hear that side effect can be arrested but not cured
Can I say the side effect I WISH I had? I wish my sex drive would go away .... that's all I'm gonna say 'bout that.
The irritability is the least of the sides unfortunately. Its annoying yes but not life threatening or a permanent situation.
Pray that's the worst one you get! Seriously.
I'm in week #16 of 24...And too, had my share of sides...The prevailing positive thought that has kept me going through treatment has been," This is all temporary." I have faith that, if I give my body the tools it needs to kick this and recover from the treatment, I'll be better than I was before treatment...I simply know this will be so. Nothing less is acceptable! ~Melinda
It is a hard treatment, I know. I am 32, genotype 3 very low viral count ( basically bordering on too low to treat) . only now I appreciate how fit and healthy I normally am. And I am looking forward to the end of it all, to feel full of energy again.
Tiredness is a big one, although a lot of sleep works. when I CAN sleep. Last night red cells dropped (I believe) I almost fainted in work, came home straight to bed- though will sleep- yeah right- fully awake till 5 pm. I noticed that the best sleep is in the mornings- so off to a book store to get some bedtime reading ;-)
Hair falls out like mad- however it was a great excuse to get a nice short haircut (my husband resisted it for years, but now he is in love with my new look- we are having a second honeymoon :-) lso I lost all little lumps of fat I could pick on me ( I was 52kg-114lb)- I look great and this keeps me motivated Itching, headaches, sleepless nights will pass .
Maybe I am an unforgivabble optimist, but I always look at the fun side of life, otherwise I suppose I'dbe on all other drugs (illegal ones) together. I hope there are people out there who will join me in the faith for the better, no matter how tough it is now. These are SIDE EFFECTS, we are not sick indefinitely. There is the end, it is just around the corner. I treated myself with a lovely holiday in Mallorka for a week on the last week of this treatment- that keeps me going!!!
I was so worried about irritability, and feeling nauseous.
I experienced both, but going through it was easier than worrying about it.
You know how it is...one day at a time.
Bug
The Riba rash is driving me crazy right now. It feels like I have a chemical burn on my chest. I have turned into a vampire and can't stand the sun hitting my skin or in m eye's. I live in CA and love the outdoors so this is going to be a difficult summer with the kids. I need to find light wt. long sleeve clothing that feels good on my skin. Does anyone have advice on that?
My favorites are 1 the bone pain and 2 the hair thingy....
Oh no! According to Dr. Scwhartz, this is really serious, :-) The office staff does seem pretty light hearted, especially the office manager. Dr Scwartz though is the one that when I was telling her about my continual side pain after my bx, said it is your stomach, we only do hcv. If I had been on my game I would have found that funny.
Of course I don't know her background and what or who she has seen, we all have issues and are recovering from something.
thats why i am here!!!! i can always make you laugh!
i call my doc gloom and doom!
peace
rita
aches, pains, fatigue have that with chronic HCV, not as bad with the summer heat. I have not been able to sleep more than 3-4 hours for awhile. My pcp, only recommends over the counter medicines and sleep aids(tylenol PM) first.I lost my appetite and lost about 25lbs, even though that was during detox and not using or abusing for over 14 months.
I am hungry all the time now, and starting to eat a lot, mostly good food.
Those that lost your appetite did you lose a lot of weight?
You know what I can't really get out of my head, and I may be off base here, but I don't feel my pcp, main contact has much of a sense of humor. I need that.
feeling like my legs are in quicksand, brain fog, extreme fatigue and mood swings.
Its also difficult for me to sleep more than 3-4 hours even with a sleep aid no I dont take them anymore.
When I wake up in the morning I feel my worst.
Hopefully you will have easy sx. Best of luck in your journey.
Insomnia, Brain FOG --- no BRAIN PEA SOUP...
And the sense that you've forgotten something --- and you'll never find it.
TX changes you. Completely.
I don't know how to describe it to you - but it changes you.
But for me the worst were the aches and pains... My bones, my muscles, my tendons and connective tissues all hurt --- and they still do.
Have to admit tho --- the doctor I am currently seeing has finally found something that actually works! I'm amazed - nothing has worked before - I felt like crying this morning when I woke up without feeling like I was dying...
This week I have played badmitton - had wild whoopie with the partner... (not in the Mall, of course -- that's next week)... Stood up at work to type ---- and actually did laundry and dishes... and played in the band... It's been 2 years since I could do that. And the world feels a lot better today.
Meki
Sleep. Even with sleep aids, the effects of months of shallow rest mounts up. To sink into a solid, deep restfull sleep was always missed. I think it had a part in some of the irritability and mental dullness. I was about as sharp as a marshmallow.
Jd ~ is great!!!!
Sides are different for all of us. My biggest side is the rash from riba, I have also had some mouth sores. I have never had flue like syptoms or fever or chills. Tired at times and Brain Fog at times. As a whole it hasnt been horrible. With that being said, its not a picnic either. There are good weeks and bad weeks. The past two weeks have been good for me. I have mild depressions and only at times. I do work full time. There have been times when i needed to take off, either because i was just wiped out. or the rash was totally out of control.
Positive attittude helps!!!
This Forum helps~
good luck
peace
rita
Thanks, sounds like a sense of humor and humility will go a long way towards dealing with all of this.
Thanks for the nomination, I have already got brain fog, friends might say I always will.
Anemic Brain Fog on the NYC subway, priceless!
Peace and Health
Head