Have you considered creating a User Group? There are discussions about dystonia in the Neurology and Rare Diseases forums, but if you'd like to start your own group, you can find out how here:
http://www.medhelp.org/health_pages/MedHelp/MedHelp---Groups/show/1021?cid=88
User groups are created, maintained and moderated by our users.You can choose to make this group public or private, and you can then invite the others to join you in this group.
What does it take for dystonia to have its own forum? I myself do not have dysonia. I just know people who do and they like people with other diseases are looking for help. I dont know what I would have done if I did not find this forum. Why would someone need to create a User Group? Is that the first step in dysonia getting its own forum?
If a member feels strongly about having such a community, they can create a User Group. That is what User Groups are for. If you don't have dystonia yourself, you can still create the group and invite those who have it to join. A forum functions very much like a user group. The usefulness of either a forum or a user group is in direct relation to the members in that group.
Thanks,
MedHelp