pituitary / brain tumors/hormones

[brainpain]

i wish you would add a pituitary /brain tumors form. cant find anything that deals with pituitary problems or brain tumors.the members that have these problems dont have any place to go. theres a thyroid form but now one wants to deal with pituitary issues. have problems finding info on pituitary and hormones.there are some members on here with pituitary problems but they are scatterd.would like to have a form to share with other members that have pituitary issues.

[crwstar]

Thank you so much for doing this. This is the main site I visit and am glad to see this forum added.

Thanks again!!

[Med Help]

Hi,

Thanks for the suggestion. We've just created this at: http://www.medhelp.org/forums/show/307.

MedHelp

[Karen41230]

Looking for any infor about this tumor .
Thank you

[crwstar]

Bump this one up. A pituitary forum would be very helpful!! Please consider this.

[enzymelover]

A Pituitary Forum would be extremely helpful to a lot of people.
As I just posted on an adrenal insufficiency forum suggestion page, the Pituitary Network Association states that one in five people have a pituitary disorder, and many people don't know they have one, until the symptoms become so debilitating they finally seek help.

People need to know what symptoms to look for, and where to go for help, etc.
Unfortunately, many doctors don't think about pituitary disorders, because the symptoms can be vague and so varied, and diagnosis is often delayed when people don't get referred to an endocrinologist.

Pituitary disorders are confusing and scary, we definitely need a forum to talk about this.  Pleeeeease?

[MSFEE]

I have put on 15 pounds in 2weeks. And I'm not feelin pretty at all. If it had not been for you and all the other ladies on her I would be lost. So thanks for just being my friend.

[crwstar]

Wanted to give this a bump. Hi All ( wave )...

Brilliant idea - It would be fantastic if there was a pituitary forum. Are there any sub forums as I've noticed that not many of the pituitary questions get answered even in the brain tumor forum.  

[brainpain]

hi, just got back here. i have night blindness and headaches that make me throw up. i have not had nose bleeds. my tumor was 7 mm when it was found. my tumor grew to 11mm then in 3mnts it grew to 22mm. i keep a low fever all the time i stay at 99.8 all time.i gained about 20pnds during the time.dealing with this is very hard,i was scared and no one to talk to. still have awful migraines and pain in my eyes . my eye swells and waters during my headaches.

[MSFEE]

I just found out that I have one. I have night blindness, massive migrains, vomiting & nause, sometimes I get nose bleeds and they dont why I'm getting those. My tumor is 6mm so far I go see the neurologist on Tuesday. Im afraid how do you deal with this?  Did your tumor start off small and then get bigger? Ms. Fee

[brainpain]

what was the size of your tumor? did you have a crainotomy or threw your nose or lip? i had the crainotomy-mine was 22mm and got in my optic nerve.i still have alot of pain-dizzy. i feel for you i cant imagine 3 surgerys.i dident have radiation so i dont know about that.my doctor dident want to touch mine but i was going blind.theres not alot of help for people with pituitary tumors. would call ask raditologst to see if it is a side efect then neou.  i wish you the best ,brainpain

[papit01]

hi i had a pituatury tumor and my doctor can"t remove i had thre surgerys for the same tumor and their are very painfull the las thing thath have worry is that i am bleding a lot of blood in the stool i dont know if this is a side efect from the radiation thah i had one month ago..