Aa
i need some advice
Hi, i don´t know who to talk. i feel so lonely. My friends my boyfriend my family doesn´t understand me.. yes they listen to me but i feel they don´t really know the living hell i am going through... i even have to look for a forum in another country because in argentina people aren´t familirarized with this illnes. i can´t stand the pain anymore. i am so sad. i have suicied thoughts. but then i make so much effort to be ok. yoga, pilates, i try to eat healthy food but nothing ever seems to help my migraines... everyone says it is a cronic illnes but how can i leave with this!!?? i can´t tollerate this anymore... i hate my life.. and before my migraines i was so happy, i used to go dancing every weekend i was the first one in my group to organize a trip now i can´t never go to tthe events i always have to say " i m not feeling so well" .... my boyfriend always tell me that i am not the only person in this world with migraine that it has to be some way to live better... i don´t know.. i hate everything he says about this subject.. he always feel so well.. he can drink alcohol all night long and in the morning go to play footbal!!!!! so i ask you, to this group, to the people with the same problem than me.. how can you work??? how can you be mothers girlfriends friends???? what do you do to feel happy?
I'm glad he listened- that is very important and that he also is willing to try to help you! Thanks for keeping me posted!
the endocrinologyst sent me to make the test blood again to see if i still have this results, he thinks there are some things to pay attention... in the blood test he will analyze not only hormones but hemogram, tiroides, insulin, etc etc... so i am glad because he really listened to me and pay attention to me...
thanks!! i will write when i have the results.
thanks!! i will write when i have the results.
Hi Surgi, yes today i have an appointment when i get home i will write you to tell you the news...
i did an MRI with and without contrast about three years ago and it was ok. i had migraines back then... but my neuro told me i should make another one...
thanks!
i did an MRI with and without contrast about three years ago and it was ok. i had migraines back then... but my neuro told me i should make another one...
thanks!
Looking at your posts, I see you already encountered Rumpled on the adrenal forum! Are you saying you had a pituitary MRI with and without contrast? Did they find anything? Sometimes, Rumpled says those tumors can hide. You should read her story- she had two! One prolactinoma and one that caused Cushing's, I believe.
Regarding all the reading you are having to do for your medical studies, is there anyone you can pay a small sum to read aloud to you? It is not good to read during a migraine attack according to handouts I have received. And I've experienced more pain from doing so on more than one occasion!
Have you been able to set up an appt. with an endocrinologist yet? Sometimes it can take quite awhile to get in to one of those specialists.
Regarding all the reading you are having to do for your medical studies, is there anyone you can pay a small sum to read aloud to you? It is not good to read during a migraine attack according to handouts I have received. And I've experienced more pain from doing so on more than one occasion!
Have you been able to set up an appt. with an endocrinologist yet? Sometimes it can take quite awhile to get in to one of those specialists.
I used to love to dance--sometimes 5-7 hours at a time, but now with the migraines and seizures I just can't. To answer your question--(Marilee always has the best answers!) I will do my best to tell you that I too often feel very alone. This group keeps me going. But there are bad days where I just want to give up. With a 12year old son who is in sports and other things it is so hard, I can't always drive to go see him wrestle or take him places. I was always a go getter before this, so it is a total life style change for me too. Sometimes if we can just take it a day, hour ect at a time it helps. Three years ago I had to stop working at a job I loved. Slowly I have found other things I enjoy and can do--like raising show rabbits of course LOL. It sounds like you do so much to help yourself, the yoga ect...and that is a great thing!!
I am always here to listen too......
It is a great idea to take info you have researched to your Dr, I do all the time.
Hugs
Tracy
I am always here to listen too......
It is a great idea to take info you have researched to your Dr, I do all the time.
Hugs
Tracy
Marilee.. thanks for your words.. my yoga teacher always says that we don´t have to feel sorry for ourselves... " get up and go" the solution will come.... i don´t know... sometimes i hate that phrase sometimes i use it becuase it became a habit feeling sorry for myself... i hope everything gets better for you,.. i know how it feels to study with migraines.. i study medicine!!! imagine... i read like 24 hs a day... and sometimes i feel i am always doing double effort than my classmates.. sometimes i feel WHY AM I DOING THIS???? if a don´t know if i will be able to work like this profesion requires?? well... i don´t know... i just study.,.. perhaps if i din ´t study i would feel worst.. without a target... i send you good vibrations from the botton of the continent!!
surgy; yes.. my neuro sent me another MR because he tought prolactine was a little high, not much but to rule out all the options... DHEA was ng/ml... is another measure... it ´s REALLY low... i don´t know why... but the gyno said that the problem was when it was high not low... but as i have said before i study medicine and i am a ver BAD PACIENT!!.. soo i have made some research too and it is "some information".. so i will take it to the endocrinologyst and we will see.. you are so kind to look for information for me!!! ( i have post in the adrenal forum and they told me to take the lab to an endocrinologyst) thank youuuuuuu...
surgy; yes.. my neuro sent me another MR because he tought prolactine was a little high, not much but to rule out all the options... DHEA was ng/ml... is another measure... it ´s REALLY low... i don´t know why... but the gyno said that the problem was when it was high not low... but as i have said before i study medicine and i am a ver BAD PACIENT!!.. soo i have made some research too and it is "some information".. so i will take it to the endocrinologyst and we will see.. you are so kind to look for information for me!!! ( i have post in the adrenal forum and they told me to take the lab to an endocrinologyst) thank youuuuuuu...
I am sorry you had a frustrating doctor visit. I know what it's like to leave a doctor and start crying over the disappointing experience.
I don't if Chinese herbs are illegal in your country. Here in the USA, licensed acupuncturists have to prescribe a number of herbal formulas and they are not readily available over the counter (which is good, because someone should be monitoring patients taking them). There are some things for sale over the counter in store pharmacy sections, such as black cohash, etc., but again, even with those things in America that can be bought without prescription like that, it is better to have a doctor who knows how to monitor you.
I wonder if you might have endometriosis, which can often be associated with migraines. I know before my hysterectomy, I had severe endometriosis discovered during an emergency surgery.
At what day of your menstrual cycle did they take your estrogen and progesterone samples? For instance, if that estrogen level was taken mid cycle, when you are supposed to be ovulating, it would look like you didn't ovulate and you should be getting your FSH (follicle stimulating hormone that causes ovulation) level checked on the right day of your cycle to see if that hormone of the pituitary is functioning the way it should. If it is not, I would pursue trying to find out if you have a pituitary tumor. I have one, but by the time it was discovered, they could not link it up to my ovulation problems (I didn't always ovulate), because I already had had a complete hysterectomy.
62-615 ug/dL is what I saw online on one website (not sure if reliable and it says labs can vary) as a typical normal range for DHEA sulfate for a female in your age category. What type of measurement does your lab use?
On another website, it states that low levels of DHEA can indicate adrenal dysfunction or hypopituitarism (where pituitary hormones that regulate the adrenal hormones are being released in less amounts than they should be). I would ask for a referral to an endocrinologist if your DHEA is indeed low.
Also, a field of vision test by an eye doctor to see if your peripheral vision is normal can potentially be a helpful clue, because if you have a large growth on the pituitary, that portion of your vision is the first to be affected. A large pituitary tumor could certainly cause a lot of headaches, and it takes a special dynamic MRI scan of your pituitary by someone who knows what they are doing to try to find one.
If you are interested in pursuing this line of inquiry about your health, you might look on the brain/pituitary tumor forum here on medhelp and get in touch with the moderator, Rumpled, who is very knowledgeable about pituitary AND adrenal issues because of her own experience.
I don't if Chinese herbs are illegal in your country. Here in the USA, licensed acupuncturists have to prescribe a number of herbal formulas and they are not readily available over the counter (which is good, because someone should be monitoring patients taking them). There are some things for sale over the counter in store pharmacy sections, such as black cohash, etc., but again, even with those things in America that can be bought without prescription like that, it is better to have a doctor who knows how to monitor you.
I wonder if you might have endometriosis, which can often be associated with migraines. I know before my hysterectomy, I had severe endometriosis discovered during an emergency surgery.
At what day of your menstrual cycle did they take your estrogen and progesterone samples? For instance, if that estrogen level was taken mid cycle, when you are supposed to be ovulating, it would look like you didn't ovulate and you should be getting your FSH (follicle stimulating hormone that causes ovulation) level checked on the right day of your cycle to see if that hormone of the pituitary is functioning the way it should. If it is not, I would pursue trying to find out if you have a pituitary tumor. I have one, but by the time it was discovered, they could not link it up to my ovulation problems (I didn't always ovulate), because I already had had a complete hysterectomy.
62-615 ug/dL is what I saw online on one website (not sure if reliable and it says labs can vary) as a typical normal range for DHEA sulfate for a female in your age category. What type of measurement does your lab use?
On another website, it states that low levels of DHEA can indicate adrenal dysfunction or hypopituitarism (where pituitary hormones that regulate the adrenal hormones are being released in less amounts than they should be). I would ask for a referral to an endocrinologist if your DHEA is indeed low.
Also, a field of vision test by an eye doctor to see if your peripheral vision is normal can potentially be a helpful clue, because if you have a large growth on the pituitary, that portion of your vision is the first to be affected. A large pituitary tumor could certainly cause a lot of headaches, and it takes a special dynamic MRI scan of your pituitary by someone who knows what they are doing to try to find one.
If you are interested in pursuing this line of inquiry about your health, you might look on the brain/pituitary tumor forum here on medhelp and get in touch with the moderator, Rumpled, who is very knowledgeable about pituitary AND adrenal issues because of her own experience.
Hi sofita,
I am glad that you are feeling better recently. I just wanted to let you know that I sometimes also get very frustrated and sad because of my migraines too... please know that you are not alone, even if we are not in your country with you, we are with you here.
If I ever feel very sad, very frustrated, or depressed... then I usually talk to my family, but if I feel like my family doesn't understand then I will try to talk to a counselor about my feelings. Sometimes counselors can be expensive, such as medical psychologists. But, many countries and cities will have free "help lines" and "crisis lines" that are either run by charity organizations or government organizations, so even when I cannot afford to make an appointment to talk to a professional counselor, I will still phone a help line/crisis line and talk to someone about how I am feeling. It is sometimes helpful to talk to someone who doesn't know you, someone who isn't a family member or a friend.
If I am ever feeling like I am at risk to myself, if I am ever having serious suicidal thoughts, which has sometimes happened when I am having a migraine if the pain is very severe and it has also happened after losing my job because of my medical condition, then I will go immediately to the hospital. It is always important to go to the hospital to seek immediate medical attention if you ever feel like you're at any sort of immediate risk to yourself. Having migraines can be very painful and they can also be debilitating and disabling. Physical pain and emotional pain can put anyone at risk to themselves, and if you ever notice that you are at risk to yourself then it is important that you allow others, doctors, to take care of you... and doctors will always make sure that you are safe if you tell them that you don't feel safe. It is important to let someone else take care of you when you really can't take care of yourself because you're in too much pain to take care of yourself.
My life has also dramatically changed since my migraines became chronic. I was one of those people who would work multiple jobs, a full time job and part-time jobs on the side, while going to school, and still stay out late every-night partying with my friends. Now I rarely make plans and when I do make plans I often have to cancel them because of my migraines. I can't work, I can rarely finish a term of school. But... I love my family and I love my friends. And, I still have happy moments, even if I don't get to go out every night... even my worst migraine months where I may only be able to see my friends only one day out of the month, that one night will be a happy night with good memories, and I would rather have one night a month with good and happy memories then no nights at all.
To answer your specific last questions:
I can't work, I don't have a job. I try to go to school, but sometimes I can't finish a term. I keep trying as far as school goes, and sometimes I finish a term and that's why I keep trying to go to school, because sometimes I manage.
My friends understand. My group of friends has changed slightly since my migraines became chronic. My friends understand and they don't blame me. Sometimes they get sad. Sometimes they say stupid things or silly things... but I understand that they're just sad and that's why they make those mistakes. They don't push me and they forgive me when I can't make it to something. I'm a good friend otherwise. I call people back on my phone and I answer emails eventually, and thoughtfully. I love my friends and I make it very obvious and they all know it... even if I can't be there in person for them.
Boyfriends are tricky. Some understand, some don't. Boyfriends with medical conditions themselves seem to understand more then those who don't have medical conditions... but, only dating guys with medical conditions isn't really a fair criteria for dating. I think you just need to be really clear about what you're able to give. I had a long term relationship while my migraines were chronic and although that relationship was terribly unhealthy, it had nothing to do with the migraines. I've dated guys while having chronic migraines too, and it's been fine.. although I usually just tell them I can't commit because of my personal focus in life right now and so it never turns into a relationship, but that is fine with me and how I want it. I think it's the same for everyone, migraine or not, you need to tell people what you want in a relationship and what you can give... and if they can't accept you then you need to find someone who will.
If you ever need to talk at all, please send me a message. I am always here to listen.
*hugs*
I am so glad that you are feeling a bit better. Please keep in touch with all of us!!
- marilee
I am glad that you are feeling better recently. I just wanted to let you know that I sometimes also get very frustrated and sad because of my migraines too... please know that you are not alone, even if we are not in your country with you, we are with you here.
If I ever feel very sad, very frustrated, or depressed... then I usually talk to my family, but if I feel like my family doesn't understand then I will try to talk to a counselor about my feelings. Sometimes counselors can be expensive, such as medical psychologists. But, many countries and cities will have free "help lines" and "crisis lines" that are either run by charity organizations or government organizations, so even when I cannot afford to make an appointment to talk to a professional counselor, I will still phone a help line/crisis line and talk to someone about how I am feeling. It is sometimes helpful to talk to someone who doesn't know you, someone who isn't a family member or a friend.
If I am ever feeling like I am at risk to myself, if I am ever having serious suicidal thoughts, which has sometimes happened when I am having a migraine if the pain is very severe and it has also happened after losing my job because of my medical condition, then I will go immediately to the hospital. It is always important to go to the hospital to seek immediate medical attention if you ever feel like you're at any sort of immediate risk to yourself. Having migraines can be very painful and they can also be debilitating and disabling. Physical pain and emotional pain can put anyone at risk to themselves, and if you ever notice that you are at risk to yourself then it is important that you allow others, doctors, to take care of you... and doctors will always make sure that you are safe if you tell them that you don't feel safe. It is important to let someone else take care of you when you really can't take care of yourself because you're in too much pain to take care of yourself.
My life has also dramatically changed since my migraines became chronic. I was one of those people who would work multiple jobs, a full time job and part-time jobs on the side, while going to school, and still stay out late every-night partying with my friends. Now I rarely make plans and when I do make plans I often have to cancel them because of my migraines. I can't work, I can rarely finish a term of school. But... I love my family and I love my friends. And, I still have happy moments, even if I don't get to go out every night... even my worst migraine months where I may only be able to see my friends only one day out of the month, that one night will be a happy night with good memories, and I would rather have one night a month with good and happy memories then no nights at all.
To answer your specific last questions:
I can't work, I don't have a job. I try to go to school, but sometimes I can't finish a term. I keep trying as far as school goes, and sometimes I finish a term and that's why I keep trying to go to school, because sometimes I manage.
My friends understand. My group of friends has changed slightly since my migraines became chronic. My friends understand and they don't blame me. Sometimes they get sad. Sometimes they say stupid things or silly things... but I understand that they're just sad and that's why they make those mistakes. They don't push me and they forgive me when I can't make it to something. I'm a good friend otherwise. I call people back on my phone and I answer emails eventually, and thoughtfully. I love my friends and I make it very obvious and they all know it... even if I can't be there in person for them.
Boyfriends are tricky. Some understand, some don't. Boyfriends with medical conditions themselves seem to understand more then those who don't have medical conditions... but, only dating guys with medical conditions isn't really a fair criteria for dating. I think you just need to be really clear about what you're able to give. I had a long term relationship while my migraines were chronic and although that relationship was terribly unhealthy, it had nothing to do with the migraines. I've dated guys while having chronic migraines too, and it's been fine.. although I usually just tell them I can't commit because of my personal focus in life right now and so it never turns into a relationship, but that is fine with me and how I want it. I think it's the same for everyone, migraine or not, you need to tell people what you want in a relationship and what you can give... and if they can't accept you then you need to find someone who will.
If you ever need to talk at all, please send me a message. I am always here to listen.
*hugs*
I am so glad that you are feeling a bit better. Please keep in touch with all of us!!
- marilee
I am glad to hear you are doing better. You seem in much better spirits...
Please be careful using herbs and suppliments.Sometimes they will not agree with your system at all.
Take Care,Theresa
Please be careful using herbs and suppliments.Sometimes they will not agree with your system at all.
Take Care,Theresa
Than you so much rudy and Surgy... it ´s really nice to hear some hope words from someone is going through the same path.... thank you again....
i went to my gyno and he told me EVERYTHING IS OK!!! I couldn´t believe it i had to go out the office before i burst into tears.. he says there are some " details" but i am ok... so i presume this details are not important because i don´t have a serious illnes but i was wondering if having hormones in the limit of there normal values could be causing the symptom... ( some of them beyond for example: 17 hidroxiprogesterone (Max. 1.10 and i have 1.7)... or prolactine Max 22 and i have 21.5) . (Estradiol 20-170 i have 24) and DHEA really low for my age 430 (28 years old: normal value 1000-4300)...
How can i regulate my hormones in a natural way????... DHEA supplements???? Chinesse herbalist?? i don´t know if it is legal in my country... i went once to an accupunturist and he told me he couldn´t give me any herb because it wasn´t legal.. can this be posible???.. rescue me!!!!
i went to my gyno and he told me EVERYTHING IS OK!!! I couldn´t believe it i had to go out the office before i burst into tears.. he says there are some " details" but i am ok... so i presume this details are not important because i don´t have a serious illnes but i was wondering if having hormones in the limit of there normal values could be causing the symptom... ( some of them beyond for example: 17 hidroxiprogesterone (Max. 1.10 and i have 1.7)... or prolactine Max 22 and i have 21.5) . (Estradiol 20-170 i have 24) and DHEA really low for my age 430 (28 years old: normal value 1000-4300)...
How can i regulate my hormones in a natural way????... DHEA supplements???? Chinesse herbalist?? i don´t know if it is legal in my country... i went once to an accupunturist and he told me he couldn´t give me any herb because it wasn´t legal.. can this be posible???.. rescue me!!!!
You're welcome. I find I have no inner strength in and of myself to draw on. That's why I lean on my Saviour, my tower of strength. His mercies are new every morning! And my family are my inner circle of friends who are supportive when I am in so much pain. They pray for me when I ask them to about my migraine.
I hope you can find a natural way to regulate your hormones, because birth control pills can often be an aggravant for migraines (which gyn docs usually try to push on you for regulation of hormones). Do you have any Chinese herbalists where you live?
I hope you can find a natural way to regulate your hormones, because birth control pills can often be an aggravant for migraines (which gyn docs usually try to push on you for regulation of hormones). Do you have any Chinese herbalists where you live?
I am glad today is a little better. Stormy is right, we all have an inner strength to pull from it is inside each of us. Then we also have to have people who get on board with us. As I put it, especially to DRs either help, listen or get the.... out of my way. LOL
It helps me to remember everything is temporary. So that way we can cope with just today or this hour. Seizures and migraines have totally changed my life but then without them I wouldn't have this group of friends or my bunnies. It is really how we look at it. Get a good support system and vent when you need.
Hugs
Tracy
It helps me to remember everything is temporary. So that way we can cope with just today or this hour. Seizures and migraines have totally changed my life but then without them I wouldn't have this group of friends or my bunnies. It is really how we look at it. Get a good support system and vent when you need.
Hugs
Tracy
Hi, thank you both four your answers... today i am feeling better, after sleeping a million hours i think the worst has gone...i have a neurologyst that takes my case.. i take pizotifen 1,5mg a day... yesterday i went to see him and he told me my hormones lab wasn´t ok so i have to see today my gyno.. well that´s a light in the darkness... thank you, thank you, thank you, for your support for giving comfort to an unkonwn... your words give me strenght... S.
I am sooo sorry you are having such a difficult time.
I was extremely healthy,worked out and ate well.I was doing everything right.I have never had a serious illness in my life.
Last January I started to have numerous neurological problems and what I later found out to be atypical migraines (aura).I was diagnosed with Transverse Myelitis(autoimmune attack on the spinal cord). Now I am facing a possible MS diagnosis because of brain lesions.
My family had a hard time in the beginning excepting what was really happenning.It is very difficult to explain neurological symptoms to some one who has never had them.I took my husband to all my doctor appointments so he could truely understand the gravity of the situation.He has become my rock....
You cannot allow your pain to controll your life. There are many medications out there that can help you lead a normal life.There are migraine specialists that can help you deal with your situation.
You need to look inside yourself and use your inner strength.You are the only person that can take your life back. if you love your boyfriend then take him to your neurology appointments so that he can understand. If he still doesnt get it then you dont need unsupportive people around you.
When I am having a bad day I always look to Friedrich Nietzche who said "That which does not kill us only makes us stronger". I live my life by that now......
Please Take Care....
P.S If you have not seen a neurologist you need to!
I was extremely healthy,worked out and ate well.I was doing everything right.I have never had a serious illness in my life.
Last January I started to have numerous neurological problems and what I later found out to be atypical migraines (aura).I was diagnosed with Transverse Myelitis(autoimmune attack on the spinal cord). Now I am facing a possible MS diagnosis because of brain lesions.
My family had a hard time in the beginning excepting what was really happenning.It is very difficult to explain neurological symptoms to some one who has never had them.I took my husband to all my doctor appointments so he could truely understand the gravity of the situation.He has become my rock....
You cannot allow your pain to controll your life. There are many medications out there that can help you lead a normal life.There are migraine specialists that can help you deal with your situation.
You need to look inside yourself and use your inner strength.You are the only person that can take your life back. if you love your boyfriend then take him to your neurology appointments so that he can understand. If he still doesnt get it then you dont need unsupportive people around you.
When I am having a bad day I always look to Friedrich Nietzche who said "That which does not kill us only makes us stronger". I live my life by that now......
Please Take Care....
P.S If you have not seen a neurologist you need to!
I do not work, I am disabled, partly by chronic migraine headaches. I don't think I ever would have made it throught my darkest migraine period without God. He is why I made it. Why I am still making it with disability. I was created to do good works in Christ, and doing them is one thing that can help lift my spirits.
I can tell you are hurting right now. Perhaps you should think about getting a better boyfriend than one who is not supportive of you in your pain, but rather dismissive. And one who drinks alcohol all night and then goes off to play does not sound like excellent future husband material, who would taking loving responsible care of a wife.
It helps to have people around you who care about you. Someone to get you an ice pak when you need it. People who understand when you want it dark in the house and not much noise at all. Someone who will give you a head massage or get you pain pills.
Is there a neurologist near you that you can go to for medicine?
I can tell you are hurting right now. Perhaps you should think about getting a better boyfriend than one who is not supportive of you in your pain, but rather dismissive. And one who drinks alcohol all night and then goes off to play does not sound like excellent future husband material, who would taking loving responsible care of a wife.
It helps to have people around you who care about you. Someone to get you an ice pak when you need it. People who understand when you want it dark in the house and not much noise at all. Someone who will give you a head massage or get you pain pills.
Is there a neurologist near you that you can go to for medicine?
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