How Many Neuro's Have You Seen So Far???!

[Erin0313]

Hi all! This one is for Pastor Dan :) It started on a question posted on the forum and turned in to - How many neuro's does it take to change a light bulb?! LOL That was Pastor Dan not me - here's the poll - thanks for answering.

This is for dx and limbolanders so that nobody especially my buddy is left out :)

[Nancy T]

Not diagnosed with anything.

Have seen 4 neurologists since 1999 but I really only count 3, because the first one did not tell me anything, just referred me to an ear specialist.

The 4th one was last year but he didn't take me seriously, and I returned the favor. :) I only saw him once. He had made up his mind nothing was wrong with me before he listened to me or examined me. He told me I didn't have MS 15 seconds after I started talking.

I had 4 MRIs between 1999 and 2003 (none since), all showing small changing spots, but nonspecific ones. I never got any other MS testing--no spinal tap, no evoked potentials except auditory--and those were highly abnormal. Apparently that means absolutely nothing.

I gave up expecting any diagnosis many years ago. The appointment last year was a crazy idea! The Lhermitte's and shocky face and wimpy legs remind me every day that something's wrong, but I will never see another neurologist.

[macaroni68]

I had my first MS symptom in April 2001. I was referred to my one and only Neurologist who diagnosed me in July 2001 after I had 2 more exacerbations one in May and one in June. He had me do two MRI's one of my brain and one of my cervical spine.

My brain MRI came out negative. It would seem that most of my lesions are on my cervical spine.

I had never heard of MS until after the MRI and I was talking to the radiologist while they were looking at the results, they mentioned that it looked like MS and then they abruptly looked up at me and said "but only your neurologist can tell you that for sure".

It was after that that I looked online about MS and about scared myself to death :)

It was a whirlwind of blood tests, and more blood tests, followed by a lumbar puncture that he performed in his office. It was after those results came back that he gave me a definite diagnosis.

And we have had an ongoing relationship ever since, professionally speaking of course :)

[Erin0313]

I just checked the results so far and I am shocked! It seems like the vast majority both diagnosed and undiagnosed only had to visit 1 to 3 neuro's to get dx. REALLY?


Am I the only one that is surprised by this? I know that my brain is a bit screwy but I really thought more of us had to go from one to another to another etc.

Maybe more ppl just need to tune in and vote and the numbers will change again.

Thanks to those who have voted and shared so far. Have a great weekend!
Hugs,
Erin :)

[Jepster]

Diagnosed RRMS with # 1, off to # 2 in search of someone who seems a bit more interested in MS.

[coffeeom]

Diagnosed by # 3  with RRMS This July.


Linda

[summerluvr]

2 neuros,
5 opthalmologists,
1 urologist,
1 ear nose and throat specialist,  
1 ER Dr.,
3 clinical medicine doctors,
1 hematogist/ medical oncologist

my diagnosis took two years, and a dozen doctors.  I would go to my GP and she would refer to different doctors because of my symptoms. (vertigo, bladder retention, leg problems weakness,, and foggy vision etc.)

Was refered to MS specialist by the Urologist, and he was quick to say I did not have MS (negative MRI), but would not address or validate my symptoms.  Ended up getting acutely ill, went to ER who ran basic blood tests and found irregularities, so referred me to ambulatory clinical medicine (like HOUSE tv show).  went to that apointment and got diagnosed with cancer and admitted to hospital for stabilization and induction chemo.