Undiagnosed neurological syndrome

[Quetzalcoatl800]

I have an undiagnosed neurological condition, and am very anxious to find some kind of explanation as to what may be happening to me.

Once or twice a year, I go through the same set of symptoms in the same order: 1. blood rushes uncontrollably to the extremities, especially the head which becomes intensely red, 2. heart beats violently, 3. feeling of being extremely disoriented, as if somebody had given me a strong psychoactive drug, 4. loss of perhaps 90% of the strength in my muscles, I can't walk but at best crawl on all fours, 5. loss of control over bowels, violent involuntary evacuation, 6. loss of control over stomach contents, vomiting, 7. blood drains from head, I pass out and remain unconscious for several minutes, 8. I gradually wake up when paramedics arrive and administer oxygen, 9. for the next 3-7 days I am extremely sensitive to stimuli and feel withdrawn.

I have seen a dozen specialists in fields such as neurology and cardiology, who tell me that they have never encountered any patient with a similar condition. I've had a battery of tests taken at the hospital: blood tests, EEG, MRI scan of the brain, EKG, ultrasound scan of heart and of neck arteries, and according to these tests I am in perfect health. The doctors rule out epilepsy, stroke, transient ischemic attacks; the violence of the symptoms makes "trivial" factors such as low blood pressure or low blood sugar extremely unlikely. The doctors tell me that they have no clue what is wrong with me, and that I will probably just have to live with this condition.
I would feel immensely relieved even just to find out that such a condition is known from the medical literature, has a name and a prognosis!

[adamIScool]

http://www.drmyhill.co.uk/article.cfm?id=439

[adamIScool]

Most likely Carbon Monoxide Hypersensitivity.

[JKale]

Hi Quetzalcoatl800:

I'm not a doctor at all but I used to get kind of sick like that after going on jogs. My doctor chalked it up to a sudden electrolyte imbalance.

[ZeeIn]

Hi.  I'm not sure where you live or if you have great insurance. Have you considered going to The Cleveland or Mayo Clinics or a University Learning Hospital?  It is a long shot, but it is possible they could spend the right amount of time running tests in coordination with talkingbto other specialists in the center.  I don't know about your experience so much, but doctors where I live are so understaffed, they have so many patients that they can't spend the time needed on more complicated cases.  They also do not have the time to talk to other specialists about their patients and with HIPPA laws, that makes it even more difficult.  I have been seeing the same doctors for over 6 years now and none of them have ever discussed my interrelated symptoms.    I have wanted to go to Cleveland or Mayo Clinics where they do talk and work together, but never had insurance to cover it.  Good luck!!!  Don't give up.  That is what I have learned.  Stay vigilant!!!

[Abhijeet Ghosh]

Dear Buddy,
It's impossible to lable this condition of yours.You have seen so many doctors who have examined you, done your tests and still now , they don;t have any sort of clue.Same with me as i am also unaware whether this sort of condition has ever been reported in our literature.
Would just suggest you, to continue with your lifestyle and hope for the best.Would not able to guide you at all as all the relevent/irrevelent tests have been performed,still nothing positive has been concluded.
Regards