I have been having lots of symptoms that seem to mimick low/high CSF pressure. But they are mostly temporary. For instance, I have gotten pressure headaches that last 5-20 minutes. I also get sudden pressure headaches that go away in seconds upon moving my head/neck. I wake up in the middle of the night with dizziness/lightheadedness and neck pain that I can get to significantly go down by rolling over.
I have also felt ear pressure and had tinnitus changes that "seem" to happen with head position, but not repeatably.
I have also had sporadic sensations of fluid moving from my neck into my head as well as sudden warming sensations in my neck.
About 2 months ago, I had a halloween costume on that weighed about 40 pounds and hung from my neck. All of this started then.
I have had a brain and cervical MRIs w/o contrast, a caratid artery ultrasound, and neck xray. All were normal.
Since my symptoms seem to be position dependent, and not all that significant when standing straight or laying on my back, I am wonding if there could be damage to some part of my neck (ie. ligaments, tendons, muscles, etc) that is allowing my neck to get into positions that limit csf flow, but look normal when lying down or standing up straight, and thus not show up on the xrays or MRI's taken so far.