Aa
Ataxia
Original post in 2010:
"I am a relatively healthy male who is about 210 lbs and 6'3". Goes to gym 1 or 2 a week and have been losing by balance. It has progressively gotten worse in the last 11 years".
Moving forward to today:
Still healthy TG but I can't go to gym because I am confined to my wheelchair. I have Niemann Pick 1 which is a type of Ataxia. My question is I have been on a clinical trial getting infusion of Trappsol(R) Cyclo(TM). I'm going to Fairfax for my 12th infusion next week. How much longer? I do not feel any improvements.
"I am a relatively healthy male who is about 210 lbs and 6'3". Goes to gym 1 or 2 a week and have been losing by balance. It has progressively gotten worse in the last 11 years".
Moving forward to today:
Still healthy TG but I can't go to gym because I am confined to my wheelchair. I have Niemann Pick 1 which is a type of Ataxia. My question is I have been on a clinical trial getting infusion of Trappsol(R) Cyclo(TM). I'm going to Fairfax for my 12th infusion next week. How much longer? I do not feel any improvements.
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