HI, I have for the last few months been experiencing, orthostatic hypertension, nausea often, pains in limbs, a feeling of sun burning on the skin on entire head and neck and it feels like its hot but my temp is always 97.4, it also feels like pressure in my head and face along with pains in my neck particularly where the arteries and nerves run and the pain runs up into my jaw often, pains randomly spoted in my head as well, I have recently started geting pains in my back and ribs, I have also noticed that what was an every now and then muscle twitch and spasm in my left eye has turned to several spasms and twitches throughout the body even in my neck on a daily basis, also I started off geting a pulsating vibration that goes along with the pulsation of bllod in the artery in my left foot and now I get vibrations at several other places all over, I sometimes get a feeling of loosing control of my bodily functions litteraly, I get excited and jump up and it goes away, I have palpitations almost constantly, Ive had ekgs, blood work, and x rays on my heart several times and they r always normal outside of tachardia often, Ive had a scan of my head wich is normal, I had electrolytes, ana panel, etc.... bloodwork done wich were all normal. This all started after a reaction I had to a drug that I mixed with alcohol almost killed me, I have since drank nothing, stoped taking the drug, and even had to stop smoking bc ciggs started making me feel so sick. I believe I have experienced autonomic nerve damage as well but no I havent had that test done and no1 has found out whats wrong yet.
Wow...sounds like you have many of the symptoms I have had. I had terrible eye twitches last summer. They were not painful but about drove me nuts. Now I have difficulty seeing in the dark and also going from a dark room to a light room. I seen my urologist yesterday. He told me I flunked both the sweat test and the tilt test badly. I have been diagnosed as moderate autonomic nerves system failure. Now I don't know if that can be fatal or not but I have had very high blood pressure (went to ER with stroke symptoms) and I also had orthostatic hypotension. Now I am dx with interstitial cystitis which is every so painful. Yesterday they put potassium in my bladder. I thought I literraly was going to scream but I bit my lip. It made my eyes water and my nose run it hurt so bad. Today I am in terrible pain. Had to have my meds compounded so had to come home without the scrpt. Should be here today. I am going on Elavil (sp) 5 mg three times a day for pain. I hope it helps I just feel so dam sick today. It really makes me mad it has take this long for a dx. You may have to find a neurologist or someone like that. My urologist knew plenty about it but really said it is not widely known about. Most people have to search for the right doctor who knows what tests to do. Good luck...I know how miserable you are and how bad you feel. My empaties.