Hi! I have never posted on a health forum, but I am so stumped that I feel like I need to resort to crowdsourcing the internet. This will be a long post, and I'm sorry, but I want to be thorough. I am a 26 year old female with sudden, unexplainable weakness. A month ago, I was going about my day as usual when I started getting a headache. It wasn't a severe headache, but it felt like a migraine as I started having severe sensitivity to light and sounds. I went home and got in bed, and later that evening lost all my strength. I collapsed getting from my couch to my bathroom. After 24 hours of severe weakness, my PCP recommended I go to the ER, which I did. They thought it could be a migraine, even though the headache subsided, and all my tests were normal. At that first ER visit, I had the following tests run:
* EKG
* CT scan of head
* CBC/run of the mill blood tests
Everything was normal. They gave me a steroid shot and I felt MUCH better, but that only lasted for a couple days. About a week later, I was so weak that I could barely breathe. I had phlegm in my chest, but did not have the strength to cough it up and I felt like I was choking. I went back to the ER and they admitted me to the hospital. While I was there, I had:
* Head and neck MRI
* EMG
* Lumbar puncture
* Blood tests for lyme, lupus, MG, MS, ALS, etc etc (dozens if not more tests, I don't remember them all)
The only thing they found was that my B12 was 185 (very low end of normal) and my LGH was low (doesn't mean anything, apparently). After 5 days, the doctor started wondering if maybe my issue was psychological. I feel certain that it isn't, I'm still very weak although it isn't as bad as it was. Before this started, I was active and pretty fit, averaging like 11k steps a day. In addition to the weakness, I feel as though my brain is in a fog and I have had terrible insomnia. I am seeing a specialist who deals with infectious diseases and CFS, but so far all his blood tests have been 100% normal as well.
Has anyone seen anything like this before? Could I have a bizarre manifestation of migraines? I sometimes get shooting pain (not in the correct places for fibro) and about 2 years ago I had to have a head MRI due to bizarre, unexplained eye pain that lasted for several weeks before going away (again, everything was normal). Currently, I take zoloft for depression and tizanidine to sleep (it helps more than ambien), and I'm on vitamin B12 and vitamin D supplements. I have a history of ovarian cysts and IBS-C, but otherwise am completely healthy.
I am seeing a psychiatrist who specializes in sleep disorders in a couple weeks, but like I said, I feel so sure that this has a physical cause as opposed to a psychiatric one. Any advice or direction would be hugely appreciated.