Dear Dawn:
Sorry to hear about your daughter. We (pediatric neurologist) often worry about intractable epilepsy in this condition. Since your daughter does not have this, you are fortunate. The only finding of motor problems is good, and we would recommend PT and OT (I imagine you are already doing this). I would also suggest that as she starts school, you be watchful of a learning disability.
Sincerely,
CCF Neuro MD