Carol: OK, I'll give you my story. My wife was "diagnosed" by a "Lyme literate Doctor" with having Lyme Disease. This Doc is considered "out there" by the mainstream doctors in our area, but she convinced us that all the blood tests, no tick found, no circular rash all meant NOTHING. She claimed the Lyme was there by finding a few symptoms of that long list you post all the time.
This LLD was sure of her diagnosis and the meds began. Heavy antibiotics for weeks. My wife was getting worse. The LLD said, "getting worse" is normal, and continued on the path of more antibiotics. We would force appointments with the Doc because my wife was in a tailspin.
I took the bull by the horns and paid out of my own pocket to go to a regular "non-LLD" that is respected in our community. He looked at all of her records, gave her a physical, and simply said, "she does not have Lyme" and she is feeling poorly because she is being medicated too strongly and for too long by these Antibiotics.
We decided to go with this opinion. By wife got better in days. He blamed her initial symptoms of "head fog", dizziness and a few other symptoms to anxiety. He was absolutely right !
I know when I joined this forum regarding my viral meningitis, someone posted that I probably had Lyme, not viral meningitis It confused the **** out of me, scared me to death, and had my mind racing for days.
The mainstream medical community does not agree with most of those LLD'ers. They blame Lyme as the cause of way too many things, some which are as simple as anxiety and depression.
I know several woman who believed they had Lyme, despite all the negative test, and personally believe the problem is psycological.