Herpes Simplex and Nerve Pain

[roxyloxy]

I have had legions on my buttocks (both sides, and sometimes simultaneously) since I was about 6 or 7 years old, reappearing as often as twice per month, depending on stress level I think.  I was diagnosed with Shingles, but when I asked for a definitive diagnosis, they did blood tests (which show antibodies to shingles) and a biopsy of the legions.  The dermatologist now says they are Herpes Simplex blisters...genital herpes...not on my genitals but on my buttocks.  Now I am starting from scratch trying to figure out where the heck is the root cause of the pain in my sacroiliac joints, buttocks, and down the outsides (and sometimes front and back) of my legs...My question is this: could herpes simplex cause nerve pain the same way shingles does?  If not, do you have any ideas about this specific kind of pain?  I used to have a herniated disk, but therapy seemed to heal it, and I've had cortosone shots in my sacroiliac joints that made it MUCH MUCH worse...permanently...I'm a senior in college, a wife and mother of three, and I need to figure this out and either fix it and go to work, or get it diagnosed, and accept disability...but not knowing is driving me CRAZY!!!  Please help me.

Roxanne

[1890]

I need help what did you do.

[SandyRog]

I was admitted to the hospital for meningitis in 2008. When I was discharged I had developed a (what I thought at the time a bedsore) it healed and I thought nothing of it.  I also began having sacral pain at that time.  I thought this was due to a fall awhile back and was aggravated by passing on my back for six days in the hospital.  I had an xray done and I did have a fracture.  The discomfort and someone pain never went away.  Sitting or driving was very uncomfortable.  And when i sit it feels like I am sitting on bubble wrap. I have a mushy popping sensation at my coccyx with pain. Message helped a little, but it has not gone away all these years Since the hospitalization I have had several 're-occurrence of the lesion in the same place.  I thought ok, it's shingles, it wasn't bad. A bit itchy and some pain. I am having an out break now and decided to do some looking on line for help.  And I find that it is HSV2 not shingles.  I accualy had a positive test and the doctor never called me about it.  And it can cause aseptic meningitis (BTW 2 spinal taps came back negative while in the hospital) and what I or we may have is sacral herpes.   I spoke with my doctor and he looked at me like I had two heads when I explained what it thought was happening.  He said I had a pyonidal cyst.  I made him take a culture anyway.  And am waiting for results.
But I am so glad to know that I'm not crazy or alone.  Now I just have to find a doctor that will help.  If not ill try homeopathic therapy.

[ETS1]

I am fairly convinced I have been having some version of recurrent aseptic meningitis, that began a few months after the nerve tingling/prickling/pain first started. My balance was way off, then my eyes started going blurry, I felt like I was dissociated from my body, and I had numbness in my left leg and left arm - it is scary. Have turned up to hospital a couple of times but have not been admitted as the symptoms subside while waiting to see a doctor. Not sick enough to be in hospital, but at times not well enough to be walking around going about daily life. Mid January this year it was all hitting me hard, now it's late March and the symptoms are still around but not as intense (i.e. my eyes will blur for 45 mins and I feel like I might tip over, but then it calms down), so I'm just hoping it's gradually lessening on its way out.

[waymash]

My name is Wayne Marsha, I am here to give my testimony about a doctor who helped me in my life. I was infected with HERPES SIMPLEX virus in 2010, i went to many hospitals, churches for cure but there was no solution, so I was thinking how can I get a solution out so that my body can be okay. One day I was in the river side thinking where I can go to get solution. so a lady walked to me telling me why am I so sad and i open up all to her telling her my problem, she told me that she can help me out, she introduce me to a doctor who uses herbal medication to cure HERPES SIMPLEX virus and gave me his email, so i mail him. He told me all the things I need to do and also give me instructions to take, which I followed properly. Before I knew what is happening after two weeks the HERPES SIMPLEX virus that was in my body got vanished . so if you are also heart broken and also need a help, you can also email him at ***@**** OR ***@****

[Willis60]

I have had HSV 2 for 25 years. When it first happened I had blisters all over the vaginal area. Incredibly painful. Nothing like that ever happened again but I have been very frustrated in not always knowing if and when I am having an outbreak. Now I have lots of nerve pain from the Labia and buttocks and back of the leg. I am very athletic so I never know if it's from riding my bike too much or lifting weights but I'm feeling now that it's been the herpes causing all this nerve pain.  I had several injections at the site which felt great when it was numb and helped for a little bit but eventually came back.  I very rarely see blisters though and it has moved from one side to the other side of the vaginal area. Nothing has been more frustrating trying to understand it and not pass it on.  It is difficult at most to try and have a relationship. The leg pain is driving me crazy and I have tried valtrex without a lot of luck. Maybe I need to take more and start taking it daily again.  

[annacharlotte]

Take zinc orally and echinacea! both available from your chemist with no presciption needed. This helps a lot of people who exhibit nerve pain as a symtom of herpes and lessens the outbreak time significantly for some. My partner takes it daily and it stopped him from having regular outbreaks. I hope this suggestion helps!

[gouworried]

Hi how r u now. I am hsv positive, with lots of symptoms pls help...