Hello, I'm a 32 yr old male. I have left supra orbital fibrous dysplasia 3.5 cm x 2.3 cm as seen here:
http://sites.google.com/site/robsaysrelax/
Symptoms are a dull headache behind my forehead for at least 5 years. Also, presently I feel light headed constantly and have continual, very distressing symptoms that are surreal, as if I am in a dream. The symptoms will get slightly better to worse, or worse to better throughout each day. I also have vertigo.
I also get these 5-second episodes where the symptoms increase and I virtually lose touch with my surroundings for 3-5 seconds as if "time skips a beat" and I usually feel a shock in my stomach when this happens. Psychology staff tells me I have derealization symptoms; I was given an SSRI which made me very agitated and the symptoms worse. At present, I can only take Klonopin but this doesn't help me. It is highly disabling for me, and very disturbing. As a result from this particular symptom, I am not an independent functioning person. My wife pressures me into believing the mass effect from the FD is effecting my brain, and my therapist seems to want me to believe this too, asking me if I would have surgery to remove it. However, every doctor I've spoken with believes my headache is caused by the tumor however no one pays any regard to this other symptom I describe, derealization - they say this is only for psychiatry to deal with. Still, I find myself very highly disabled without knowing what is causing this other symptom. There is no psychological reason for me to feel this way, though I would be neglectful to not mention that my mother is schizophrenic. However I do not have symptoms like her. Could this be caused by my tumor in that location at outside the prefontal cortex as it is, or something else in my brain or chemistry? PLEASE help, I am so sick.