I have had numbness across most of the right side of my face up through my scalp and out to my ear for 2 months now. Occasionally, the numbness turns up elsewhere: in my right shoulder, today, for the first time, in the right side of my neck and my thigh. I am also getting especial tingling and occasional spasms around my jaw. I have no other symptoms. MRI last week negative, electrolytes fine, no B12 deficiency, kidney and liver function normal, blood pressure fine, do diabetes, no thyroid problems (all recent tests). Neurologist said its not a motor neuron disease or Bell's Palsy. Also don't have any pain, so Neuro doesn't think this is trigeminal neuralgia, and that would explain the occasional traveling paresthesia. I eat a mostly vegan diet with some seafood, very little sugar or processed foods, and salt intake under the RDA. I do drink coffee in the morning but no other caffeine.
I did have two very short lived bugs this last winter -- about 36 hours of fever and general malaise, but nothing major. they occurred within two months of each other. The doctors are scratching their heads since my symptoms don't seem to fit anything they know of, and the neurologist is chalking everything up to stress with some possible TMJ thrown in (dentist did say I clench my jaw but that TMJ couldn't be causing all of this).
I should mention also that I have just come out of an acute bout of depression and anxiety (I have suffered from depression my whole life), and am on Lyrica, Celexa (generic), Acyclovir 400mg and Klonopin (1/2 mg 2x a day to control the jaw spasms). I take niacinimide, vitamin D, B12 and Magnesium. I have PKD which is, so far, asymptomatic (so I don't take calcium anymore) , am slim, don't smoke or drink.
This is driving me crazy. I don't know how to advocate for myself with the doctors for further exploration/testing to locate the cause of this. While i am willing to accept anxiety may have some role in this, I genuinely don't believe it is the cause. Please, if anyone has any ideas, I am getting desperate.