Oscillopsia diagnosis. Scared.

[eternalrose3]

Hi I am 42 and a Non Drinker, Non drug user F and I am hoping to find someone else who has been diagnosed with Oscillopsia. I was first diagnosed with this 5 weeks ago, with 1 good symptom free week in between these 2 bouts of Oscillopsia. I dont know if getting the shot and getting viral syndrome from the Pertusis/Whooping cough part of the shot can connect me to being diagnosed with Oscillopsia but the viral syndrome from it (fever and chills after the tetanus shot sent me back to the ER) and the Oscillopsia both followed right after getting the shot. But the best way to describe this scary condition is that every thing in my vision field feels like it is moving, jumpy and feels like the earth is shaking in my head when I walk. I was diagnosed by 2 ENT doctors and was told that it involves my inner ear. I woke with vertigo on Monday after the shot and by Friday I awoke with the Oscillopsia and it was severe and I called 911 who thought it was vertigo only and my husband came home and took me to my ENT doctor who gave me this as a 2nd diagnosis on top of the vertigo. Both conditions make me physically sick at my stomach from the shaky movement feelings it makes me feel. I have had a negative MRI and CT. A few of the family doctors at my family practice has never even heard of this condition but it is very real. I feel helpless and like I am going crazy! I also don't know if this is something that is permanent? Or if it will come and go like it already has once? And if I will be tied to having it off and on for the rest of my life? I cant get straight answers and would like to know what you have been told if anyone out there that has had or have this Oscillopsia diagnosis and can relate to me? Thanks so much and blessings.

[Ron232]

Wow, you have no idea how much your post means to me. I sure hope you are still following this community. Just came from the Eye Surgeon today and was diagnosed with Oscillopsia sympton. 15 months ago I had Pertussis and Pneumonia of which I have NEVER got well. I've been complaining of vision problems almost a year. I've had a Carodid Artery ultrasound this week but no problem was found. My doctor today said he has never seen a case so got his medical book out to look at something he had only read about. He has said only a Optha  Neurologist

[pittbull1]

Hi,
I know EXACTLY what you are going through. In 2/2008, I started having visual symptoms similar to what you decribed. More symptoms began to show up and (long, long story short) after a year and many diagnosis by many doc's and specialist, i was diagnosed with a condition called Chiari Malformation. It's where the  cerebellum herniates into the spinal column and causes neurological symptoms. I didn't show up on my MRI because mine was just short of the required measurement for diagnosis. (which is a joke I found out later.) You ma want to look into that condition, but it does almost sound like it could be from your shot. I have since had surgery to remove the lower portion of my brain to allow for more room for the cerebellum, but unfortunately still have the oscillopsia. There is still hope that it can improve over time. In the meantime, I'm trying my best to live a normal life, ,but it is tough and scary to deal with. I wish you the best.