Symptoms that get worse and no answers

[aleksandar_]

I am 29 and this is my first post on this website. I am very worried and I hope someone can give me some advice.

When I was a child (when I was 10 to 15 years old), I had quite frequent attacks. The symptoms include weakness/sensitivity on the right side of the face and right side of the body, seeing blurry from the right eye, severe headache, numbness in the right arm, numbness of thong and difficulty speaking, slurred speech, difficulty thinking. The symptoms lasted few hours per time.

After years without symptoms, I had an attack on January 2018 and ended up hospitalized. The attack had same simptoms as years ago. I even fell down (without passing out) at work and got taxi to the hospital. The symptoms lasted few hours. Now I am in a different country (Thailand) and the doctors suspected brain stroke. After clear brain MRI, they diagnosed me with an atypical migraine.

Fast forward to this day, for the first time I have persistent continuous symptoms that started 2 weeks ago. Symptoms include:
- Weakness/sensitivity on the right side of the face and right side of the body. Pain and sensitivity in the right eye.
- Feeling less conscious (like between dreaming and reality)
- Difficulty thinking, concentrating, sometimes difficulty typing and speaking.
- Full body muscle pain
- Almost constantly tired
- Nausea

I went to doctor again, they did MRI 3.0T on the brain with contrast. Come out clear.

Now I don't know what to do. I am trying to find a good neurologist, but I am very scared because for the first time symptoms are persistent :(

Any help would be welcome.

[aleksandar_]

After few, months, most of the problems persist.

New things:
- Positive ANA, Fine speckled 1:160
- Swelling in feet (muscle mass swelling) and swelling behind knee

Please , if anyone has any input

[aleksandar_]

Anyone has any response? I can't do my job properly and I am freaking out :(

[SimonInCA]

Hi Aleksandar, did you find a neurologist?  Given your history and persistence of symptoms since January it would be best to seek professional advice.  Best wishes for your recovery.

[aleksandar_]

Yes, I did. After the clear brain MRI, he send me to muscle doctor and told me there is no need to visit neurologist again. That is very weird for me because I still have symptoms. Do I need to find another neurologist?

[SimonInCA]

Perhaps another neurologist may be more helpful, or at least take more interest in your symptoms.

I'm having similar, though slightly different, symptoms - undiagnosed for 3 months after clear blood tests, cervical spine & brain MRI,  and EMG/nerve conduction studies.  I've come up with a list of possible causes, and divided into "possible", "maybe possible", "unlikely" and "very unlikely" then read up about each.  There are a number of other tests I'd like to undergo to rule out some of the "possible" and "maybe possible" causes.  Unfortunately, the doctors seem to be Ok with the "take these drugs and come back in a month" approach, which isn't acceptable to me.

From your symptoms, I also wouldn't rule  out some nutritional / inflammation issues, or even allergies to certain food groups.  This is also worth discussing with your doctor (General Practitioner, Neurologist or Muscular) when you have an appointment.

Good luck.

[aleksandar_]

Thank you very much! I really appreciate it.

Do you think that inflammation is possible, for 20 years, come and go?

[SimonInCA]

If the cause is inflammation, it certainly could come and go over long periods depending why it occurs.  My docs continue to draw a blank, so next week I will start acupuncture, and next month I’m seeing a NUCCA chiropractor.  In the meantime I’m also going to try “The Elimination Diet”; the most damage this will do is have me change diet for a few months.

[aleksandar_]

I got positive ANA, 1:160 fine speckled.
Was scared of Lupus...
Swelling in feet (muscle swelling, no inflammation detected on mri). However, my rheumatologist thinks it is not systemic autoimmune yet.

[SimonInCA]

Sorry to hear Aleksandar.  It won't do any harm to review your current diet & switch to an anti-inflammatory diet of some type.  If you do find some relief of symptoms, then it may help the diagnosis of your Rheumatologist.  If not, then a change in diet of this type should be harmless.

[drbobade]

Hi. did u performed  x ray for sinuses viz. water's view. check fungus in ears.

plz tell type of pain.

[aleksandar_]

Thank you for your comment.

A doctor diagnosed me with chronic sinusitis last year (he didn't perform XRay).

Do you think sinusitis can be cause to all my symptoms, even muscule pain, numbness, cognitive problems?

[aleksandar_]

It is deep muscule pain