I know what u mean, I use a cane and have for over 10 yrs now....I am only 2.5 yrs post op as I was only dx'd in '08....
I would also look into related conditions such as Ehlers-Danlos, disk issues, even lupus can be an issue as we seem to be prone to connective tissue and auto immune disorders....so do ask ur Drs to check for u if u do not feel the issue is the cut nerve.
Chiari and syringomyelia are life altering conditions unfortunately.
"selma"
I have an MRI alomost once a year to monitor my syrinxs. It has not grown since the first op 24 yrs ago. Everything is the same. Thank God!
I have learned to live with it and really it does not bother me at all. It took me sometime to get used to it, but with so many other symptoms to worry about this is a piece of cake. I posted before that I take care of my right leg and pamper it a lot. It is the only right leg I have!!!! lol
I thank you for your kindness and loving words!
Hi...I know we already chatted in the chiari forum...
May I ask, have u had a MRI to see if the syrinx is growing again?
A nerve being cut will cause these issues...and nerve damage from a shunt surgery or the posterior fossa decompression surgery...this is something that can happen.
I am sorry u had this as a result of ur surgery.....
"selma"