Thanks not sure that it grew but I will ask him, my brain MRI was a film in an envelope and got lost between hospitals but it had been looked at by a neurologist and neurosurgeon so I'm told but I will ask, Thanks for the replies. I made sure I asked more questions this time but obviously still have more to ask.
Do u have copies of ur 2009 MRI? Many times we r told it is clear when in fact it is not, they just do not consider chiari something to be concerned with.And something is causing ur syrinx to grow.....
I wold ask for a redo on ur brain MRI and get copies of all MRI's and the reports....not all Drs know about this.
Good luck
Just to update went back to Neurologist, he was far more concerned with it this time asked me If I realised it went down to T10 which I didn't got feeling he didn't realise, he was completely different this time still can't do anything but will monitor it again in 6 months.
Thanks, thought I was missing something so I thought I'd put it out there. I was in shock when he said it that I didn't say much. New Mri is of cervical and thoracic. Brain scan was clear in 2009 so no chiari. I was expecting the watch and see approach which I am fine about but need a neurologist for this. I was expecting what he said so I didn't challenge him on it but I will ask your exact question when I do. Thanks for reply.
Hi...not sure what ur Dr means it is too small to be called a syrinx....what else would it be?
We do have a forum that have others with syringomyelia as it is related to Chiari malformation that is the forum many post on about their syrinx's......
Do u have copies of ur MRI? ...Ur new MRI what area was it of...the cervical, thoracic spine or ur brain?
With a syrinx, many times they r too small to treat surgically with a stent or a shunt....but I never heard too small to be classified a syrinx....odd
http://www.medhelp.org/forums/Chiari-Malformation/show/257?controller=forums&action=show&id=257&camp=msc
I hope u pop over to the Chiari forum and chat with others with syringomyelia.