So what do you take now for td?
No I had some difficulty with the side effect profile as regards Zofran but I did find it helpful and its shown some promise in studies and other people have found it to be of help. Tardive dyskinesia can be reversible if caught in the early stages but otherwise is permanent. There is continuing research into new treatments but they are still trying to understand exactly what it is neurologically from what I was told by one of my doctors which is one of the reasons its difficult to treat.
The literature suggests there is no "cure" and that the condition is permanant. Nevertheless my "little one" developed such symptoms at age 99, when I discontinued her psychiatric meds. The symptoms gradually disappeared and ceased to exist when she was 102 years old She is now 106 years old.
Thank you for your time. So are you still taking zofran?
Yes I have advanced tardive dystonia and have been tried on all available treatments and many in clinical study. More commonly used treatments include Bachlophen. Aricept, Requip, Symmetryl and Mirapex. I was not tried on Xenazine which can be used due to the risk of depression but that has shown to be helpful. Botox injections can be used depending if the spasmic activity is localized. I am on the Catapres application which has shown to be helpful. The medication Zofran has shown to be of use in clinical study and was helpful for me. The natural remedy rhodiola can be used with a neurologist's supervision. The rest of the medications I take now are clinically showing results as a first use so further research has to be done of them before they can see if they are of any help. All of the above information should be discussed with a neurologist who is a movement disorders specialist who would be the one to diagnose and treat tardive.
Also they have to diagnose what medication caused the tardive and change it to one that won't . Right now as regards antipsychotics
(which is the most common cause) Clozaril is the only antipsychotic that won't mask while worsening tardive though there are a new generation of antipsychotics in study the Nmda receptor modulates that have shown not to but they are still in the early stages of clinical study. For clinically accurate information google "Patient Education Tardive Dyskinesia" (note as the site itself says "some of these medications may be medically neccessary" and for a clinically detailed article that could be discussed with a neurologist put the search phrase "tardive dyskinesia" and then "Emedicine".