Oh, I feel for you. I recently got out of the hospital for the same thing. Ten days just like you. Only now I'm leaking from the drain site and we tried a blood patch at that site but it didn't help. Now we will look at other options. I have had four CSF leaks in the last three years and each time I have found that my mind had a hard time recalling things. I call it a foggy brain. But when the leak stopped, it didn't take very long for the brain to rebound and then I didn't have problems. I too have a tethered spinal cord, and they have been in the cord twice, once to take a tumor out and once to untether it, and other medical things as a result of pain, etc.
I didn't have the balance issue, so I can't speak to that. Hope your symptoms go away quickly. I often tell my friends that surgery and recovery are hard, but a leak just ***** the life right out of you. Every day is an adventure from God, just not the ones I would choose!!
Hi...I wanted to invite u to the Chiari forum, where we have members with TC, like myself...I have not had the TC release yet.....but did have the surgery for chiari.
http://www.medhelp.org/forums/Chiari-Malformation/show/257?camp=msc
As for a CSF leak...they r tough to deal with.....lying flat like u did is the best way to deal with it as well as staying hydrated...plenty of water and some caffeinated bevs....
I am curious, do u also have chiari?
thanks for the link to Chiari. I don't have it, and had never heard of it until I found it on this site. There sure are a lot of similar symptoms. Sometimes it's hard to know where to post things - neurology, back pain, chronic pain, Chiari.
I was born with a tethered spinal cord. I had a deep dimple in my low back with a red hemanginoma. Back then they just thought it was a cyst. Since I have a tethered cord and not Chiari, should I post on this site or where?
Hi , u can continue to post here if u wish...u may find more in common with those on the chiari forum as the conditions r related and symptoms similar.
I too was born with my tethered cord....and bcuz we have it, we can have the cerebral tonsils pulled down causing us further issues.The issues r similar to chiari malformation.....I was also born with my chiari malformation so the TC is not the cause of my herniation, but, it did not help me ne.
"selma"