Almost 3 years ago, I developed shingles. It was a really bad case. Every since then, I have had intense muscle spasms. I get muscle cramps all over my body constantly!!! Neurologists have done everything, "within their power" to figure this out, I have no insurance, I am self pay, I am only 27, (( it first started when I was 24)) I have had a catscan, ekg, you name it, seems as if I have done it!
My diagnosis is "Chorea"(( I have involuntery muscle movements frequently daily my toes move all by themself as well as my fingers. I also have my twitches all over my body constantly)) but no medicine seemed to work for longer than 2 weeks, I am tired of living with this pain, everyday, for the past 3 years, waking up in the middle of the night with severe charlie horses that lasts for most of the time at least 8 minutes. The other day I had a very bad episode. My whole body was cramping all at once!! It was the worst pain I have experienced in my life! Today, I had another episode with the same scenerio, just crying and screaming like a baby, I cant move, it seems as if I dont have any control over my body! Very frusterating, very painful, and it is very old!
If anyone has any suggestions, or input, please... PLEASE! Let me know, I would really appreciate it! Thanks for reading...