Neurology Community
45.2k Members
Avatar universal

Tolosa Hunt Syndrome

12 month history of THS, very slow recovery on steroids. Any other successful treatments tried by other people with THS? Connie
4 Responses
Avatar universal
Hi.  For THS cases which are not responsive to steroids, some chemotherapeutic and immunosuppressive agents like azathioprine and methotrexate may help.  Radiation therapy has also been tried with some success.
Avatar universal
Hi. Thanks for response. Will discuss these options with Neuro.but hope it doesn't get to that.In the meantime will keep looking for other people with THS for support/advice.
Avatar universal
Span/ Connie...................... Since your post is from a while ago, just wondering if you are still on steroids? Did you ever try chemotherapeutic or immunosuppressive agents? My husband is the one dx with THS and he has been on predonisone for about 1 year now. (40mg daily). He can even reduce the strength by 5mg without having pain. I told his Dr about the other treatment possibility and she sed she would rather get him off prednisone and manage his pain in other ways.

Dr Roque ...... do you know of any physicians in the states that knows about THS? Aside from one neurologist who mentioned THS in passing at my husband's consultation, no other physician we have been in contact with had ever heard of THS. Even his current neurologist, that he was referred to because she is a headache specialist, had never heard of THS and had to research the condition before his next appointment.
Avatar universal
I have THS, got it in May 2009. Was on steroids for 3 months, and I am very happy to be off the steroids. My eye is still shut and paralyzed and I am praying it gets better soon.  I do still have headaches and I have had 2 steroid shots in the eye with THS.
Have an Answer?
Top Neurology Answerers
620923 tn?1452915648
Allentown, PA
5265383 tn?1483808356
1756321 tn?1547095325
Queensland, Australia
1780921 tn?1499301793
Queen Creek, AZ
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease