Who here has pseudotumor cerebri???

[bethaniet586]

I am just curious to see how many people have pseudotumor cerebri on this forum...?

[ulike2no]

I have been going to a nuero-opthamologist for about two months because my regular eye doctor notices that my optic nerves were swollen. I had an MRV which was normal and I had an MRI which came back normal. I am scheduled to have a LP on the 17th and I am scared out of my mind. My NO told me that she thinks in IIH so thats why I am going through all of these tests. I am so scared. My vision is fine. I just have neck and back pain, nausea, and headaches. I am 26 years old and I hope this turns out to be something that will work itself out. I was told that weight loss has been known to reduce the swelling of the optic nerves. I have lost 50lbs but I need to lose more. Has anyone had an LP before and if so, can you give some comforting words?

[Middlegirl63]

Hi! I just wanted to encourage you by letting you know that I have had the LP and it wasn't bad. The worst part of the whole thing was the worrying that I did. So, relax, say a prayer and stop worrying! God is in control!

[Middlegirl63]

Hi! I just wanted to encourage you by letting you know that I have had the LP and it wasn't ;t bad. The worst part of the whole thing was the worrying that I did. So, relax, say a prayer and stop worrying! God is in control!

[mamita00]

Just a question. I was noting the times that we all tend to be online. Do any of you trouble sleeping? I do from the fibromyalgia but I think this adds to the problem.

Hope you're all having a good and pain reduced day!

[Cath278]

Just to make it official, Im here to( cant resist being included!) Diagnosed in July this year after being treated with the wrong thing for a year. By the way ,everyone,symtoms are very similar with other illness... Cath278

[mamita00]

Heya! I have PTC and all of it's head hurting beauty :) And yes Samantha as you know my neck kills. When the pressure in my neck is intense so is my headache. Gotta love it.

I am having a good weekend, thanks. Snake catching with my daughter. Baby ones, too cute!

[medchick0523]

You both know I have PTC,... but I'll put it out there for those that don't know yet!

Do either of you get neck pain at the base of your skull? It seems to correlate with the intensity of the headache.

I know a few others with Chiari, though theirs developed after shunt surgery. I think I'd ask for a third MRI... how can a MRI show a Chiari.... and then not?

Have a good weekend ladies!

[rosemary67]

i have been told i have ptc, still waitin to have a LP done, have blurry vsion and headaches in the lower part of my skull. I was first told i had chiari malformation and needed immediate surgery and then the second MRi did not reveal that, so a lot of unanswered QNS.