eagle syndrome symptoms?

[esya]

An ENT confirmed Eagle Syndrome, bilateral.  This was after excluding dental issue, eyestrain or problems, TMJ, stroke, etc (fI have a serious family history and PAD, personally).  The muscle relaxant my md gave me to try for a week last spring worked the best for the pain, but put me to sleep so I discontinued it.  

I went to a neurologist in August bec of 5 months of pain.  It is located in front of ears, behind jaws, radiating up to eyes and down to throat--adams apple and the back of my neck feels stiff.  I have since had periods of double vision, ears ringing or throbbing, and increasing difficulty swallowing.  I was missing several days of work at a time, he put me on the anti-seizure stuff they are using now which allows me to work but not effectively.  Took me off analgesics. It feels like I have the headache and sore throat of strep throat all the time, just less or more depending on the level of the Depakote.  My ENT doctor says he does not do or recommend the surgery for eagle syndrome; could my headaches be problems from a blood vessel growing into my ear or what?   I am deeply depressed due to the debillitation of my life from the pain.  Who should I go to for a second opinion?  What should I ask for? I do not have a history of depression before this condition.  I am 53 and female.

[liisabjork]

I had a car accident and had a CT of my neck and I was surprised by a Diagnosis of Eagle Syndrome....I get left ear pain, Pain runs along my clavicle to my shoulder. Pain with the turning of my head. And YES I have had this popping sensation upon Swallowing almost my whole life. A very unique , awkward sensation. I get ear pain too. Most of mine are in the left side.

[faceSA]

I have severe pain in my throat, neck,ear, mouth and teeth for the last 2 years. i've been for every test and x-rays possible, BUT according to all..... nothing wrong.... I am sure that I have 'Eagle syndrome", al my symtoms are the same, it is unbareable, I did some research and also find the same symtoms on "Temporal tendonitis". I'm from South-Africa does anyone knows a docter here who treads this??/

[Petesgrandma]

Please what is the name of ur doctor and number and location.  I live in UTC.   THANK U SOOOOOOO MUCH

[Petesgrandma]

Please give me the name of ur dr and number in San Diego.  Thank u

[Denatuck123]

Hi my name is Dena" My mother sister and i have Eagles syndrome. I did have my right styloid partialy dissected. They said it was longest one ever been dissected and it went down in the New England journel of Medicine. My surgeon is Dr. Charles Moore @ Emory Hospital in Atlanta. He performed a intro oral approach. I now need to do the right side. It is a very painful surgery. And it takes 2 months of healing drinking liquads only. Im glad i did the surgery But Cleavland clinic does the outside apprach. Which i wish i had done. Because they can remove more. Im now on permant dissabilty. I have good days and bad days. But at least i know its not in my head. Its a real disease!!!!! Also you need a 3D cat scan to identify the lenghts of the styloids" Best of luck to you all. I know living with this is TERRIABLE!

[Tiger7551]

I had bilateral Eagle's syndrome.  Just had the second styloid process removed.  I am still recovering but I can say I am glad I had the surgery.  It was done intraorally so the recovery is like that of tonsillectomy.  I live in the New Haven, Ct area and was lucky enough to find an ENT familiar with this syndrome who has the courage to operate.  NOT taking care of this can cause all sorts of serious problems.  My bones were 3 inches and a little longer than 3 inches.  One was growing into my mouth and could be felt under my tongue.  The other was growing into my throat and was making it difficult to swallow.  

[rosnahmatzin]

Who is your ent