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infantile spasms vs benign myoclonus

5 days ago my 9 month old started to forcefully jerk her head down towards her knees when she sits up. Sometimes her arms stiffen slightly and recently she sounded as if the wind was being knocked out of her. This can happen once or for a minute straight. It appears to take place when she is tired before her first nap of the day or before bedtime. They took her blood and urine and found nothing so we were rushed to children's mercy. The team of neurologist said her symptoms were that of IS but they wanted to take a 24 hour EEG with video. She had a few onesie episodes "maybe"  while hooked up but not a cluster. I didn’t want to leave until they caught a cluster but they diagnosed her with Benign Myoclonus. Right now she is really smart for her age, she speaks 4 words, gets up and walks on her walker all by herself and plays hide and seek. I haven’t noticed any delay but this has just started. My question is, what are the differences or what should I monitor? The neurologist  just told me to monitor if she digresses, I feel this would be too late if she starts to digress. My worst fear is losing my child's personality and her capabilities in the future. Please help me.
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