SOMEBODY has to know the answer to this please!!! I am like going crazy here!
Hi jessie. Yes, you can have PTC/IIH with out papilledema.
It can cause problems, the lack of paps in getting a diagnoses..
I think, from what I know, if you do not have paps or some people do not have headaches, then they are just lucky!
You need to have a lumber puncture done to decided if you do have it. It is the gold star test for a correct diagnoses.
But usually, you have the less invasive tests first, like a Cat scan, MRI. If these come back negative, then the next step is a lp.
Can I ask why you are taking accutane? Its Vitamin A supplement, right? If this correct, then you could have PTC? IIH from it. It is a know trigger for this illness.
If, I can be any further help, drop me a line. I have IIH.
(That's its more up to date, world wise recognised name)
It stands for Idiopathic Intracranial hypertension.
Best of luck. Cath278
thank you cath! this was very informative. I'm a little bit anxious about whats going on with me but i guess i'll see how the next three weeks go.
Any time. If you need any help with it all, message me, and I will reply. Best of luck, Cath278