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517095 tn?1214422127

muscle twitches

hello , i have been told that i have post viral , fatigue syndrome, by doctor and rhumy, and my question is , is it normal for my muscles to twitch, to swell up for long periods of time, and when i lie on said muscles i get a feeling sensation in them like there pulsing, moving,  sounds wierd i know but the only way i can describe it
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Avatar universal
I have similar symptoms.  For the past year, my muscles twitch on both sides of my head, in both eyes, in both arms and both sides of my buttocks.  If I slightly lean on my arm, my muscles twitch too.  I have been told by my nuerologist to keep a journal of symptons so when I come for my annual follow-up, she will be able to understand the pattern and posible cause.  I wish there was some type of medication to cure this condition.  It is driving me crazy!
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316262 tn?1211657471
Come on. You know your body. You know it isn't normal. Post viral syndrome....what virus? Herpes, shingles, all related and don't ever leave your body totally.  Sounds like the docs don't know what the heck it is and are giving it a generic garbage can name.
I can call my problem "idiopathic small fiber peripheral neuropathy".  That doesn't mean squat. It only describes it. 2 years and they are no closer to a diagnosis.

you are on the right track getting online and asking questions. dive into it with a passion. be your own diagnostician...detective. The more you learn about your symptoms, the more help you can be to the docs. do searches for each "weird nonsensical" symptom.  I'll bet you money there are others out there like you.  I just met someone on this site who cried reading my post because I described her symptoms...I may not have the same thing, but I suffer from the same symptoms.  Learn, learn learn. Find local support groups for conditions that sound similar to yours. Start one if there is not one.
11 years ago I saw an orthopedic, neurologist, neurologist, infectious disease, rheumatologist taking about a year.  Finally a frriend suggested lyme disease and I went to a general practitioner/pediatrician a family doc. He listened. He believed me. He treated me and saved my life.  I had to keep going for that year to doctors who didn't believe me and dismissed my symptoms.
Go go go go and learn. Be your own advocate. The doctor thinks about you only for the 15 minutes you are infront of him.  You have to do the rest.
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