Dear Doc,
I'm female, 46 years. Sorry for my bad english. I have been diagnosed with Prolactinoma ( 0,5 cm) 4 years ago. My Endo prescribed me Cabergoline 0,5 mg per week. From the very beginning I had strong side effects such as low blood pressure, fatigue, dizziness, depressive mood, abdominal pains and anxiety. Even after few months those side effects didn't get better, so my life was just no life anymore. Prolactin levels were after few weeks of Cabergoline normal, in the lower norm range. But I was forced to reduce the Cabergoline dosage, because I couldn't handle with the side effects. So I'm taking all the time only 0,25 mg Cabergoline in a week. The side effects are less now and my Prolactine level was till now only slightly over the norm range ( mostly between 20 and 25, the norm is 4-23). The MRI every year is without a change, the tumor is not getting bigger or smaller.
I have regular period all the time.
But in July 2011 I was diagnosed with a hypothyreoidism and my Prolactin level was much higher then usual: 40! Could it be because of the Hypothyroidism or it was my high prolactine who caused Hypothyroidism? I don't have Hashimoto, ( the Endo said, although my Thyroid has only 6 ml volume). I started with Thyroid hormons, 50 L-Thyroxine ( in Germany)
So my Endo suggested to increase Cabergoline too, on at least 0,5 mg pro week.
I have tried this few weeks ago, but I again feel depressed, have blood pressure problems, I'm sleepy all the time, having heavy nausea, and I have strong anxiety attacks, which are worse of all my symptoms. I'm wondering, if those anxiety symptoms are caused by high prolactine, or are they maybe some kind of worsening after taking thyroid meds? THS is now good, 1.4, but Ft3 and Ft4 are still in the lowest norm range.
I don't know what to do- I just can't live with the side effects of Cabergoline, but otherwise there is no hope that the tumor would shrink some day, right?
thank you!