rally has a tethered cord

[jaygrote]

after 2 years of asking why my son ( he was a full term twin) walks on his tip toes, i was unsatisfied with the pediatrician saying he will grow out of it. i went to a pediatric physical therapist who after an evaluation said that there were some balance issues, abdominal weakness, and tightness in his legs. not to shocking. i told the pediatrician what i had done and she sent us to a ped ortho sugeon. with a horrible bed side manner she ordered us DAFO braces. she also said " do you see any adult walking on their tip toes? no, because they figure out that you dont walk that way and stop" still no x-rays or any pictures. continued therapy without a diagnosis for 8 months. after having a wetting episode when having some stretches done at pt it was suggested to see a ped nuero. ( he also has chronic constipation) . in the meantime we figured out that he has some sensory processing issues. the neuro ordered an MRI and finally a tethered cord. am waiting to see them to get more details. will probably require surgery. told the ped ortho surgeon. got the feeling that she looks and feels like an incompetant ***. he is now 5. feel like i have failed him, even though everyone including our family thought that i was picking at nothing. any suggestions? is surgery dangerous. will it hurt him to wait a few months due to staring school? can he still play soccer this fall?

[selmaS]

Hi ...I am glad the tethered cord release was benificial for ur DD....since she also has chiari u may want to join our Chiari forum here on MedHelp.

I am sure u will find it helpful and u can help others by sharing ur experiences.

selmaS
Chiari CL

[morgan13]

my daughter age 7 now had the tethered cord surgery done age5 it did wonders for her according to what i have xperienced with my daughters it will only get better w surgery after my daughters surgery she was walking around the hospital unit w in 1 day amazing and she also grew a few inches in height awesome i am for surgery my daughter also has chiari malformation her life is symptomatic everyday on how she feels i wish u all the best

[selmaS]

Hi...the best drs for this condition is a NS that specialiszes in chiari malformation as it is a related condition to tethered cord.

I also have tethered cord along with chiari and recently had the chiari decompression surgery...I am doing well and my issues for the TC are getting better.

We do have a chiari forum  here with a list of the drs that specialize...I invite u to join us here on MedHelp.

"selma"