sever axonal neuropathy

[sos88]

I am so desperate for help.  About 4 - 5 years ago, I had started to experience tingling and numbness in both of my legs and feet.  I thought it was Restless Leg Syndrome and ignored it.  One day I noticed I could not feel my feet at all.  No tingling, no pain, no feeling at all.  I could walk on hot coals and not even know it.  About a year ago, I started having a drop foot and paralysis in my toes, of course causing falling at times.  I did not ignore this for 4 years, I have seen many doctors, neurologists and specialists.  Nobody has been able to help me.  I have a severe axonal neuropathy in both feet also starting to go up my legs into my knees.  I am also starting to have pain and tingling in my hands.  I have had about 7 months of high dose IVIG treatments.  My balance is very very bad as well.  I am also having IBS symptoms with all of this going on.  I just don't know where to turn.  Could this be MS since both my right and left sides are experiencing this equally?  Could it be ALS?  I am a 40 yr old female.

Things that may have contributed are:  a herniated disc at L5-S1 about 15 years ago (I have not seen a doctor for this injury in about 10 years), a fall down some stairs about 5 years ago.  my  fasting sugar is 109-115
Any advice or help would be appreciated.  Thank you so much

[Foggy2]

Axonal neuropathy is progressive, so it never goes away but contunues to get worse (see the link I provided above (wisegeekhealth.com).  So your other foot problem could be related to this, but only an exam by a doctor can tell for sure.  The link discuses treatment options; there are few.  You're diabetes and hypertension work against you with this disease, so keep them under control.

[sos88]

thanks dear
first of all yes i am a diabetic patient  range from 109-130>> asthma<<hypertension   ...  am 58 y

i did  a new MRI ,,it was worse than before with scoliosis to the left

i feel numbness and electricity in my second foot ,,would that be another foot drop ?
is there any treatment for the sever axonal neuropathy ?
would it be smth more serious after the axonal neuropathy ?

[Foggy2]

I am very sorry to hear of all you have been through.  As you know, axonal neuropathy is a deteriorating disease.  Sometimes it is caused by diabetes.  Do you have diabetes or have you been checked for it?  You research your neuropathy to learn more about it and its prognosis by looking under wisegeekhealth when results come up.

As for your spinal situation, I would follow up or see a new neurosurgeon about this problem.  If you can't get in fairly soon, see your PCP and perhaps he/she can order an updated MRI of your spine since it has been so long since the last one was done and you also reinjured yourself.  Get copies of your films to bring to the neurosurgeon.

I wish you the best of luck.  Know that we are here to help support you. :-)