symtons getting worse with cavernous angoioma

[Roxy180]

i have a cavernous angioma  with the blood vessels coming apart and now it seems as if my tonsures are getting worse.
i keep falling asleep for no reason every few minutes and i feel alot of pressure on my head like someone is squeezing it and feel confused at times and bad aching in the back of the head and during that time i feel very sleepy and tired and become very weak and can't move.

[DloAngelo]

Hi, 3 months ago, I have been diagnosed having a ca (1.7" in size) on the left teporal lobe of the brain. I have undergone radio treatment and now curently on a anti seisure tabs. I feel much better after this has been done. I did not have any side effect to this exept for a bit of hair lose that grow back after a month. I hope this gave you hope and trust pray your daughter healing and restoration.

[naomi22166]

Hi, I have a caverous angioma, it was just under 3cm a year and a half ago. It is deep in my right cerebal hemisphere. I am due to fly in july, a 4 -5 hour flight, and am very worried. I have had a few small bleeds,am getting headaches, and a few problems with pain in my right eye. I am reluctant to go back and see my neurologist, as he always makes me feel like i am wasting his time. i also get numbness in my left hand,arm and leg. my speech gets muddled too. Do you think it is safe for me to fly?  Thanks  naomi

[naomi22166]

Hi, I have a caverous angioma, it was just under 3cm a year and a half ago. It is deep in my right cerebal hemisphere. I am due to fly in july, a 4 -5 hour flight, and am very worried. I have had a few small bleeds,am getting headaches, and a few problems with pain in my right eye. I am reluctant to go back and see my neurologist, as he always makes me feel like i am wasting his time. i also get numbness in my left hand,arm and leg. my speech gets muddled too. Do you think it is safe for me to fly?  Thanks  naomi

[ummeed]

I am not a neurologist.Whatever i am telling you is what i feel and know about these things as i have read a lot.This is not a professional advice.I am a medicine graduate and in no way should i be held responsible for any outcome due to this advice whatsoever.
I think you SHOULD NOT go for cyberknife ie ablation of angioma through radiation.Radiation can cause injury to the brain tissue,it MIGHT produce undesirable outcomes(radiation induced injury and malignancies).I t is much better to be safe than sorry.She is your daughter,you should do the best for her.

[ummeed]

I am not a neurologist.Whatever i am telling you is what i feel and know about these things as i have read a lot.This is not a professional advice.I am a medicine graduate and in no way should i be held responsible for any outcome due to this advice whatsoever.
I think you SHOULD NOT go for cyberknife ie ablation of angioma through radiation.Radiation can cause injury to the brain tissue,it MIGHT produce undesirable outcomes(radiation induced injury and malignancies).I t is much better to be safe than sorry.She is your daughter,you should do the best for her.

[carree70]

WOW.  So we got our 3rd opinion from a Neurosurgeon yesterday and what a difference.  He explained a procedure he does called "cyber knife" which is a beam of radiation that "kills" the malformation.  No cutting into the head, risks are minimal, no pain!  Why did it take 3 doctors to find one who told me about this?  My daughter is having a Functional MRI first, then we will decide if surgery or cyber knife is the way to go, but this Dr made it sound like cyber knife is my dream come true!  Any thoughts?

[impish]

For lots of good info on cavernous angiomas go to the angioma alliance website.  Lots of great info!

[carree70]

Wow, I am in shock that I found this website today.  Just what I need.  My daughter is 18 and was diagnosed with a 12 mm cavernous angioma in the left temporal lobe this past Dec. (2009)  She had one day of memory loss, right hand numbness, and headache all caused from a bleed.  We have seen 2 neurosurgeons so far.  One wants to do a functional MRI to see if it is reachable to remove.  The other says not to touch it.  We are seeking a 3rd opinion today.  Besides the surgery question, I am wondering that if she leaves it alone, and someday has children, would a C-section be safer than going through labor?

[elaine42]

Have you ever heard of having hematuria a couple of days before the diagnosis of cavernous hemagioma in the brain.  I wondered if this could have been the beginning of the bleed...?

[Roxy180]

Thank you  so much for the advice i really appreciate people like you.
Do you work on the cavernous angioma?
If so where are you located?
ty and may god bless you also.

[PaulMD]

Hi there.

All of these symptoms that you are experiencing may directly be related to the cavernous angioma that you have, but before anything is to be done, it is better to ascertain if this is really the culprit.  Sometimes, an element of anxiety or some form of depression can aggravate the symptoms that make things appear that the cavernous angioma is causing all of these.  I suggest you discuss this well with your neurologist, and if it is really the angioma that is causing these problems, then a surgical approach may be in order (though any surgeries of this nature has significant inherent risks).

Regards and God bless.