Some aspects sound like Moebius syndrome, but some do not. People with Moebius syndrome usually have pareisis, not paralysis - meaning that the lack of sensation would be relatively uncommon.
For more info:
http://www.moebiussyndrome.com/
http://www.facebook.com/moebiussyndrome
http://www.facebook.com/pages/Many-Faces-of-Moebius-Syndrome/189215821115287
Hi there. Mobius syndrome is a rare congenital neurological disorder characterized by facial paralysis and inability to move the eyes from side to side. Most are born with complete facial paralysis and cannot close eyes or form facial expressions. Other symptoms are limb abnormalities like club feet, missing fingers or toes, chest wall abnormalities, crossed eyes or strabismus, difficulty in breathing or swallowing and corneal abrasions due to difficulty in blinking. You have some features conforming to this diagnosis. Your multiple neurological symptoms are also suggestive of multiple sclerosis. MS is a chronic demyelinating disorder where the disease phase is characterized by active phase and remissions. It has multiple symptoms and signs and is a diagnosis of exclusion. The symptoms of multiple sclerosis are loss of balance, muscle spasms, numbness in any area, problems with walking and coordination, tremors in one or more arms and legs. Bowel and bladder symptoms include frequency of micturition, urine leakage, eye symptoms like double vision uncontrollable rapid eye movements, facial pain, painful muscle spasms, tingling, burning in arms or legs, depression, dizziness, hearing loss, fatigue etc. The treatment is essentially limited to symptomatic therapy so the course of action would not change much whether MS has been diagnosed or not. Apart from clinical neurological examination, MRI shows MS as paler areas of demyelination, two different episodes of demyelination separated by one month in at least two different brain locations. Spinal tap is done and CSF electrophoresis reveals oligoclonal bands suggestive of immune activity, which is suggestive but not diagnostic of MS. Demyelinating neurons, transmit nerve signals slower than non-demyelinated ones and can be detected with EP tests. These are visual evoked potentials, brain stem auditory evoked response, and somatosensory evoked potential. Slower nerve responses in any one of these is not confirmatory of MS but can be used to complement diagnosis along with a neurological examination, medical history and an MRI in addition, a spinal tap. Therefore, it would be prudent to consult your neurologist with these concerns. Hope this helps. Take care.