Our 21 up daughter was recently dx with IPC/PTC,,,
Her Lp opening pressure was 35, she had had vision probelms and palipaldema and had had optic nerve decompression done on both eyes. The first week showed visual improvement, 2nd weeks on after eye surgery showed a worsening of her vision,
ALong with this she had to have a medic port inserted a few years back, and had it for over 2 years. It was removed when it gathered blood clots at the end of the tubing and then 'threw' them off into her juggler vein, and carotid artery. (she almost died from this).
Her Neuro Opthomologist and NS both say she needs a shunt. My question is this"
(1) can the shunt also cause blood clots in her brain since she is now 'prone to have them'?
(2) after reading lots of information on the internet I am wondering is a shunt is really worth it? There seems to be more complications from them then help. What are your thoughts?
Thank you for your time.
L Bristow