I am so scared

[Sunes]

post operative cysts
by Sunes, Feb 11, 2008 11:13PM
Hello Dr Goodman.
I had hysterectomy 2 years ago and was diagnosed with stage 1 TCC of the ovary. The chemo was not an option 'cause I had allergic reaction.2 years later I have 2 cysts fluid filled. MRI showed little mural like dark spot 2 cm large on both cysts. Year ago when one cyst was 3 cm in diameter My Oncologist wanted  to operate and remove it. I was scared because it took me 8 months to get back to myself after hysterectomy and asked her if we can wait She was not very happy but agreed. Now she is saying that if she operated then she probably would miss the other cyst which is now 6 cm in diameter.
My question to you is: can this be a recurrent TCC and if so why is it growing so slow. At the time of diagnosis the Oncology team decided that it was High Grade Malignant TCC. What's going on now with me? What if the cysts are benign and I am cut up again for no reason.
Please advise I am so scared and don't know what to do.
Thank you, Sunes
I posted this with a MRI picture of my cysts on the forum Ovarian cancer and I don't know if you can see it.
Thank you, Sunes

[Sunes]

Dear Dr Goodman. Thank you so much for advise. I will talk to my Oncologist again soon. I need to explain that when my cyst was small on the "R" the doctor wanted to operate quickly. 6 months later she admited to me that if she operated then she would for sure miss the second cyst on the "L". And I would have to go through two surgeries. That's why I was scared  ...what if they are not seeing things growing inside? I had to cry and then they agreed to scan my whole abdomen and they found two hyperintense lesions on my liver which are adjacent to the gallbladder the largest measure 5.5mm. Today I got my CA 125 and it is 37.2.
Would PET scan be of help to me? to see whole body?
Thank you .
Sunes

.

[Annekathryn Goodman, M.D.]

Dear Sunes,

it is understandable that you are scared. However, you should have surgery. there is no way to know without surgery if the new cysts are malignant or just fluid within adhesions.  I did look at your pictures.
Transitional cell cancers do have a better prognosis and are less likely t recur than other subtypes.

But do not hide your head in the sand. Your gyn oncologist is giving you sound advice
Please let us know what happens
take care.

[Annekathryn Goodman, M.D.]

Dear Sunes,
this sounds very complicated. I think you should get a second opinion about whether you should have surgery now or wait and see. I see your dilemma. it sounds like you are getting mixed messages. that must be very hard!.
Please let us know what happens
take care.

[Sunes]

Yesterday I had another MRI and it really did not show much progress in my cancer growing. They said that Chemo now is out of the question...slow growing cancer...I am allergic to chemo...and they new that...it showes how they read my charts.....surgery?? they decided to wait 5 more months.When I asked why I did not get a straight unswer. It's possibly slow growing cancer-that was their answer.And you are telling me I should get my head out of the sand!! How can I trust this ongoing decision changing system.
I am scared....and I have every right to be..The oncologists are not sure what to do and they seem like they want to shoot in the dark-trial and error. BUT WHY!!!
Can you speculate now what should I do???
Thank you.

[Sunes]

http://www.medhelp.org/posts/show/434740

My MRI image is on this link posted in Ovarian Cancer Community.
Please advise, Sunes