8 month old with multiseptated cystic lesion on/near left ovary

[Bmo311]

We have been told that our 8 month old daughter has a "multiseptated cystic lesion" on/near her left ovary.  After her second ultrasound they referred us to a pediatric surgeon and she needs a CT scan to find out what and where this mass exactly is located.  The doctors are not giving us any info.  They keep saying that they don't want to give us any incorrect information until they know what this is.  I know no one can diagnose her via internet but we are going crazy waiting.  We are wondering what this may be?  Also if it is something they will have to operate on will she be able to grow normally as a girl with only 1 ovary?  Is this heard of in little girls, and if you could give me the best and worst case scenarios so maybe we can be a bit prepared?  (FYI, she originally had a renal ultrasound to find out why she had a UTI at such an early age, after a VCUG she has been diagnosed with reflux and put on a low dose antibiotic for a long term and hopefully they say she may grow out of this) The mass went from 2.4cm on July 10 ultrasound to 3cm on July 22 ultrasound. CT is scheduled for this Thursday and surgeon appt mid August.  PLEASE provide any info you can.  Thanks!

[Deanna L Aftab Guy, MD]

If the ovarian lesion is large they may indeed want to resect it for two reasons, to prevent enlargening and pain and possible rupture and second to get the diagnosis after pathology is done. I had one girl with cystadenomas bilaterally, again presented in pain, a mass on the ovary that was not altogether just a cyst(partly solid, partly cystic) and it ended up benign, just annoying cause it had to be removed. The goal is to work very very carefully with your pediatric surgeons. I am hoping this is a benign lesion and that if it needs resected you will be done with it!
Keep us informed, labs need to be done meanwhile, your surgeon should collaborate with peds endo
consider LH, FSH, estradiol, Hcg but the doc will decide, they are the experts!

[Deanna L Aftab Guy, MD]

work closely with your surgeon, be sure it is a pediatric surgeon and I think this is the best approach

[Bmo311]

Thank you for your response.  Since this question we completed the CT and saw the surgeon.  They want to remove the cyst because he said it didn't look like it was getting any smaller in fact maybe increasing in size and that since she was not menstruating then it is not a functioning cyst and he did not want it to cause torsion or rupture.  The only labs he mentioned were the day of surgery to test for anemia.  I will ask about further labs.  Do you think we should get a second opinion?