Are you familiar with this condition? 2 year old boy is the size of an infant, he weighs 11 pounds, his body stopped growing but his organs are still growing normally, he gets growth hormone shots several times a week, he can not hold his head up, sit by self, stand, walk or talk, and is fed by tube in his stomach, family is trying to find someone who is familiar with this condition because doctors in mississippi are not familiart with this, can you point us in the right direction?