Hi, My 17 month old son has started waking up with blue/purple lips and the skin above his lips are also blue. His fingernails are blue as well. This started about a month ago, but doesn't just happen when he's cold. He's been to a few specialists for some other issues, not sure if they are related, but he's been having fevers in the evening ranging from 100-105 about 5 times a week for over 4 months now. He sleeps a lot (16-20 hours a day). His hands and feet are always ice cold, even when he has a high temp. He's been waking up with the doctors think are seizures, where he shakes all over. He had a 30 minuted EEG, which was normal.
My pediatrician didn't seem all that concerned until this new blue thing started. I don't know if any of it is related, but I am worried about his heart. We took him to a rheumotologist last week who said his best guess is that he has an underdevoped circulatory system. Just wondering if I should push for an ECHO to find out for sure, or what I should do!! Any advice would be highly appreciated!!