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Welcome to the Polycystic Ovarian Syndrome (PCOS) Forum!

I am so thrilled and honored to be the new Community Leader (CL) of this forum!

My name is Niki and I welcome all new and old members of this forum. This forum was created for women like us who suffer from the symptoms of having PCOS. Together we can share our experiences and knowledge of what we already know and we can also learn a few things from other members as well.

I too have been a long time suffer of PCOS and I know a lot about this concern. I encourage everybody on here to be respectful of others and have open minds on our own personal experiences with this. This forum is not to judge or make fun of anybody, we are all here suffering the same thing and we all need to be supportive of one another. I encourage you all to ask questions, post your knowledge and feel free to contact myself or any other member for more information.

Again, I welcome all new and old members of this Forum!!!

-Niki (msniki412) (CL)
37 Responses
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1583546 tn?1296671467
I was on the pill for 13 years and went off the pill 8 months ago & still haven't started my period.  I went to the gyno & he said this is common, he took blood & tested for thyroid issues & came back normal.  He perscribed Provera for me to take by everyone says that made their acne horrible and just made them start but didn't help them to cycle regularly.  I have hated all the side effects of being off the pill.  Dropped weight (I am 120 as is) so losing wasn't what I needed, by boobs got smaller, I am breaking out and even on my back which I never did before.  I have heard that some people get really bad acne after a year of being off the pill, has this happened to anyone?  My mother had sever PCOS and I am afraid I have it but the Dr. didn't seem to think I did.  I am lost and frustated! Please share any input or your thoughts, I am just curious what other peoples experiences are.  
Helpful - 0
Avatar universal
just want to get ur opinion.

let me get straight.

I have poly-cystic PCOS?
I just went to OB last night.

The last time I went to my OB is Dec 17 (in Philippines) she found out that I have PCOS. And she gave me a medicine name metformin. And the second time i visit her is Jan 3 and I am 6weeks delay because my last period is November 18. And she found out that I have 1 big egg and my period will come after 3days. But then, when I came back to UAE til now I don't have my period. I do a preg test and it is negative :( So to find a solution I went to med center last-night to check what's happening to me. And the doctor found out the same thing "I have PCOS" and Im not pregnant. And she give me medicine which im taking from dec 20 til now (Metformin). So my question is why im delay for 8weeks and 4 days now?

Then why my OB in philippines told me I have 1 big egg and i have my period after 3days but till i dont have it? So it means metformin don't work for me?

why does my OB in Phil told me that my blood will come after 3days?
then why till now i dont have it. and i take HPT its negative.

I dont understand. do i need to get a new Ob/gyn?
Helpful - 0
Avatar universal
Hello ladies....

Firstly, I want to say that it's great to find a forum like this and read about all of the mirraculous pregancies as well as others who are suffering too.

I was diagnosed with PCOS just before my 8th birthday - which is when I first got my period.

I was a fat kid with an obviously oversized belly, I wasn't overly hairy (I have arab blood) but did suffer extremely heavy periods (with clotting).

When diagnosed, I had excess testosterone and between 30-40 follicle cysts on each ovary.

I have always had regular periods (although I gained weight when given Diane at age 12),

I tried metformin at 14 but found the diarrohea intolerable.

I tried to have them lasered off at 18, but they only came back.

I have always suffered from obesity (PCOS doesnt help) so had a gastric band in 2005. I lost about 25kg but still had the potruding PCOS belly so decided to have lipo/tummy tuck late last year. This was also complicated by heavy heavy bleeds, so much so that it needed to be repeated after several hematomas were found.

At 20, upon having unprotected sex for the first time in my life, I fell pregnant.

Unfortunately though, I began having heavy hemmorage episodes from 12 weeks (apparently because of a low lying placenta)- I carried on through though but at 27 weeks, after 15 weeks of weekly HEAVY (looked like i'd been shot in the vagina) bleeds, I went into labor and my daughter died almost instantly. I have had my case (pregnancy) looked at my 5 different ob/gn docs as well as blood doctors and endocronoligists and no body can tell me why i bled so much and HOW I was still alive after I lost so much blood (2xthe amount of blood in my body over 15 weeks).


Now I am told that I have free fluid in my pelvis. I am seeing a new GP as I have moved states but she isnt helping. She says that the fluid is normal and that I may have chlamidiya. I dont know if I have pelvic pain or tenderness as I simply dont feel pain down there anymore (I've lived with PCOS for 16 years).

Not sure if I want to start a new forum about this. I just thought I'd share my story.

In the 16 years Ive been suffering, I feel that the worst symptom is obesity. It's a vicous cycle, you can only cure PCOS with weight loss but you can't lose weight with PCOS.... I hate it !!

I don't know if excess blood in the body is a symptom of PCOS or if Im just abnormal in anything (and everything) to do with hormones.

To those who have just been diagnosed, my only advice to you is to keep your weight down. Number 1 PCOS rule.... as my endocronologist said to me 16 years ago, you will be dieting FOREVER and EVER (just to maintain your weight)... My advice is to change your lifestyle... YOU MUST!!! I walk 30 mins 5 times a week, dont eat dinner, eat loads of fruit and vegies and drink loads of water and I only JUST maintain my weight (88kg @ 169cm @ 24yrs old)....

Good luck ladies....

Rebecca
Sydney, Australia
Helpful - 0
1462119 tn?1286227171
Hello, Im 23 and new to this as of today =) I'm so happy (I guess you could say) to find out that I'm not alone in this. I was just diagnosed with PCOS yesterday but I've had a feeling and reasearched things for a year now and thought I had PCOS.
My Dr. ordered a blood test and talked about starting me on Metformin and see how that works and maybe a few moths after adding clomid.
My husband and I have been ttc for 1 1/2 years and l look forward to any helpful tips and encouragement.  Thank you =) !
Helpful - 0
Avatar universal
Hi.  I am 26. i just joined the site today.  I was diagnosed with PCOS about 8 months ago because I was having periods lasting three weeks or having two periods a month.  I was blessed to have a baby girl 16 months ago and i think it was the pregnancy that through the PCOS into overdrive.  I never had the symptoms before getting pregnant.  My dr has me on seasonique right now she doesn't want to do surgery until we have exhausted the pills that don't seem to be working.  I'm tired of bleeding and i am just looking for female support that have an idea of what it feels like to deal with this.  My husband is awesome, but he is a guy and can only help so much.  i'm looking forward to this group and getting support.  Thanks in advance.  
Helpful - 0
1450509 tn?1284906320
Hi, I was diagnosed two years ago with PCOS. My doctor put me on the pill and 100mg spirnolactone (spelling?) a day to help clear up the acne and extra hair. I was curious as if anyone else had any info on different types of medications they may have been put on. Being on 2 different kind of testoterone reducing medications I am losing my sex drive. I feel I am too young to lose my sex drive and was just wondering if anyone was on anything different that still has the same benefits as above, but not such a self-esteem crushing side effect.

Thanks. :)
Helpful - 0
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