I'm 21 weeks nd my baby has hydrocephalus

[3351270719226448392_489_5]

Has anyone, or is anyone going thru this? I'm only 21 nd this is my first child. She has isolated hydrocephalus Which pretty much means she has water on her brain for no reason. It's not genetic. I'm so scared nd I just wanna cry all the time. I don't know how to deal with this...

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I'm New Too This But I Love It So Far

[angelicaxrose]

look up the national pediatric hydrocephalus foundation founded by mike and kim ilions.... my cousin has hydrocephalus and this foundation is nation wide and very supportive! They're on fb and have a website.  just Google it. God bless

[limabeanmommy2015]

the drs told my mom the samething about my baby brother and his just turned out his head was just to big his body .... instead of looking at the bad look for the best out prepare for the worst hope for the best all you can do and pray

[3351270719226448392_489_5]

Thanks! Her case is severe. Nd I kno I'll love her no matter the situation. It's just so scary. Not knowing the answer is so hard on me. But I hope everything works out for u too !

[Marykepre]

I am 22 weeks along with our second baby and we were told that our baby has a heart problem- his right heart ventricle is smaller than the left. It is a completely different situation, but I also feel like you... we are seeing a fetal specialist in 4 days time and I'm terrified. Keeping you in my prayers- I believe that God can heal our babies before they are born

[2484651834364241675_202_5]

The doctor told my mom that I had a sist on my brain when I was in her belly and also told her that my older sister was going to be downsindrome. Neither of us has anything wrong. We're perfectly healthy. But what I'm saying is they're not always right and if they are I hope everything turns out good for you and ur little baby!