PLEASE HELP!!! please, please, please

[PrinceShawnsMom]

Many children are born with Sickle Cell Disease & because of the parents lack of knowledge, families are blindsided by this.

It is VERY serious & dangerous disease, just like cancer & autism but because they're not many advocates, not many people have heard of it.

My 5yr old son suffers from this disease. He is on monthly blood transfusions & his medication that he takes daily costs well over $1000 /month. From several hospitalizations every year, to the unbearable pain he deals with, he will never live a normal life.

If you have the slightest consideration for mine & other families who suffer from this, please take 2minutes to read  & sign the petition to continue funding. We have less than 3weeks to reach 100,000 signatures so that the White House will take action. It's comoletely free & takes no more than a few mintues in total. Please have a heart!

Go to www.sicklecelldisease.org & follow the petition link. (I couldn't post the link)

[PrinceShawnsMom]

BUMP!

[PrinceShawnsMom]

BUMP!

[PrinceShawnsMom]

@farhana127 thanks!

BUMP!

Please help my 5yr old who has this disease by signing & sharing on your Facebook. Completely free & takes less than 5minutes.

[farhana127]

Signed

[PrinceShawnsMom]

@susi543 thanks so much! ☺

Who else will sign & share the link to make a difference & help our families?

[PrinceShawnsMom]

BUMP!

WHAT IF YOUR LOVED ONE SUFFERED FROM THIS DISEASE??? Would you then take 2minutes to sign?

[PrinceShawnsMom]

@diiddlybop It's a good thing you know that, as most don't & are blindsided during their newborns screening. Thank you!

[diiddlybop]

My bf is a carrier, thankfully I'm not. I will be signing.

[PrinceShawnsMom]

Thanks so much ladies, especially for sharing on fb to reach more people! ♡

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PLEASE SIGN & SHARE ON FB! 2weeks left & still need over 60,000 signatures.

[mommyof3Ts]

Signed and shared on fb. Kuddos to you for bringing so much awareness in one post!

[Rere_19]

Ok I did it and I read about it, Im gonna have to get my BD tested because now im very aware of this since I have the trait.

[PrinceShawnsMom]

@3rdndone I completely agree with you about parents educating their children. I had only heard about it once from a family member who severely suffered from it. So when they told me my 1st born would have it, I was clueless.

@rere_19 Yes there's pain, strokes, priapism, hand-foot syndrome, infections, anemia, acute chest syndrome & more.... truly su**s!

[Rere_19]

I will do, I dont know what the disease is like but I do have the trait and im still confused about it, my mom never told me the actions on it I just know it causes lots of pain.

[PrinceShawnsMom]

@Loveyou4ever11 Keep trying! Mine did that at first too.lol I was *****d, but after refreshing it a couple times it went through & I got the confirmation email.

Thanks ladies! ☺

Don't forget, whoever is reading this, this could be you. Although it is predominantly African-American disease, all can inherit it. Don't wait until it is you or someone close to make a difference.

[loveYou4Ever11]

Im so mad! I tryed signing it and it wouldn't let me! It kept high lighting my email address..i will Try again soon!

[lela6]

I sign it. thank you for sharing I was one that didn't know about this disease.

[3rdNdone]

I signed it. BUMP.

[3rdNdone]

I have the trait I have known since I was a child. I was told at the same time I was told about sex to never  have sex with someone who has the trait or.else my child would have the illnesses. It is so important that parents explain medical  history to their children and explain how important it is to ask and inform their partner/s about the trait.
This is an important post thank you for posting and sharing you and your son's story I will sign your petition.

[number3andme]

My 2 boys r carriers and when my ex cheated on me it was with another carrier his daughter has the disease and his cousin died a few yrs ago from it it is sad to see ur kids in pain I mean real pain ... signed

[PrinceShawnsMom]

BUMP!

[PrinceShawnsMom]

@nisha_rachel thanks so much...

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Ladies you are mothers... imagine your baby suffering from this disease. How would you feel or deal with it?

All it takes is 2minutes for you to sign the petition to make a difference.

Please share the link on your social cites as well! Thanks!

[Nisha_Rachel]

@PrinceShawnsMom thank you hun :) he was a beautiful soul and I do wish he were still here but he did what he was ordained for him and he did so with such dignity and grace. I can only imagine what having your own flesh and blood suffering from the disease is like, I pray God continues tp bless you with strength. From what I have seen it is an extremely painful disease. Thank you for being an advocate in fighting for more research! I hope your little one is well.

[Nisha_Rachel]

Typically people who are of mixed race are at a higher chance of being a carrier. It is especially prominent in those who are of African descent.

[PrinceShawnsMom]

@dorothy701 Yes, wathcing my son go through it way worse then having it myself. All the days I stay up with him giving him motrin & tylenol w/codine round the clock & massaging whatever hurts just so he can sleep for a little is just as painful for me. I would much rather have it then watch him live the rest of his life with it. Thank you!

@jgarciaquinones14 THANKS SO MUCH FOR SHARING IT! It reaches way more people that way-some who may be affected & not even know this is going on.

Thanks to all who signed &/or shared!