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tachypnea and hypotonia
Hi,
My 8 week old son has been hospitalized 2x since being discharged from the NICU all of these were because of his tachypnea. (including him being admitted to the NICU when he was one day old)
He has also been dx'd as hypotonic - being extremely floppy and having "no resistance to gravity" he is doing PT and OT 3x a week.
He has had many different test done to determine why he breates at 120 per minute and all have been negative (chest xrays, blood work - blood gas levels and metabolic things, a complete sepsis work up, spinal tap, abdominal ultrasound, and the MRI)
The best we have been told is that his tachypnea is caused by his hypotonia because he is too weak to take deep enough breaths so he needs to take many shallow breaths.
A sleep study did show that he hypoventilates when he sleeps and he will being using a CPAP to help this situation.
He feeds well, and is gaining both weight and length.
We have exhausted the obvious and not so obvious in trying to find a cause for what is going on with him, and any suggestions or input would be welcome. Thank you,
Tracey
My 8 week old son has been hospitalized 2x since being discharged from the NICU all of these were because of his tachypnea. (including him being admitted to the NICU when he was one day old)
He has also been dx'd as hypotonic - being extremely floppy and having "no resistance to gravity" he is doing PT and OT 3x a week.
He has had many different test done to determine why he breates at 120 per minute and all have been negative (chest xrays, blood work - blood gas levels and metabolic things, a complete sepsis work up, spinal tap, abdominal ultrasound, and the MRI)
The best we have been told is that his tachypnea is caused by his hypotonia because he is too weak to take deep enough breaths so he needs to take many shallow breaths.
A sleep study did show that he hypoventilates when he sleeps and he will being using a CPAP to help this situation.
He feeds well, and is gaining both weight and length.
We have exhausted the obvious and not so obvious in trying to find a cause for what is going on with him, and any suggestions or input would be welcome. Thank you,
Tracey
A related discussion, breathing problems at 12 (hypotonia) was started.
MEDICAL PROFESSIONAL
Your son should be seen by a good pediatric pulmonary specialist in your area. For sure he should be seen by a good pediatric neurologist! Maybe he should be seen by a geneticist.
Hi,
He has had an MRI, chest xrays, abdominal ultrasound and extensive blood work (blood gases, sepsis, metabolic, liver screen, and the list goes on and on)he is being cared for by SHANDS Pediatric Hospital (he was also born at a SHANDS hospital and was in the NICU there) But to the best of my knowledge he has not had a thyroid panel and this is something I am going to ask his pediatritian tomorrow.
Thank you for your input.
Tracey
He has had an MRI, chest xrays, abdominal ultrasound and extensive blood work (blood gases, sepsis, metabolic, liver screen, and the list goes on and on)he is being cared for by SHANDS Pediatric Hospital (he was also born at a SHANDS hospital and was in the NICU there) But to the best of my knowledge he has not had a thyroid panel and this is something I am going to ask his pediatritian tomorrow.
Thank you for your input.
Tracey
What about a complete neuro workup? A brain CAT scan or MRI? Have they done a thyroid panel? I assume that he has been seen at a university setting children's hospital? What about chromosomal studies and a genetic workup? It is, as I'm sure you know, a good sign that he is feeding well and gaining weight. Is he alert, smiling, tracking with his eyes? 120/min is fast for an infant for sure. I used to be an NICU nurse in my earlier days, so if I can think of anything else I will post here. My heart goes out to you.
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