dear cydpink,
how did your appointment go? i hope you were treated with respect and that the doc took the time to listen to you.
please let us know when you have the energy to do so.
blessings,
binx
Thanks guys
really useful stuff
I've just been making notes as you suggested Sarah just date and brief description of what happened and how long it lasted.
I like the idea of the calendar that's a really good idea.
I do a journal on this site but it can be difficult to see how long something lasted and it's a bit of a chore to have to trawl through all the journals and trackers - exactly what I've been trying to do today - yawn!
I'm seeing another neuro at a different hosptial to the last one (June 2008 - I can't beleive it's 3 years ago - so much has changed since then - sadly for the worse!)
Fingers crossed I get someone who'll listen and won't dismiss me immediately.
Thanks again xx
Hi Jerky Girl
Suz here ;o) Just wanted to say all the best for your neuro appointment, I hope it goes well for you.
Don't be intimidated by the neuro they are only human after all...I hope this one treats you well and gives you some answers.
A timeline is an excellent idea and I agree with Sarah keep it brief.
Big Hugs
Suz
Good morning! I think that it's good that you are able to see the neuro again. Is it the same one or a different one?
As far as the timeline goes, it probably is a good idea. I never used one, but it probably would have been better for me if I had. It's sooo easy to forget everything that you want to bring up; you get caught up in the moment, etc. As far as my GP told me regarding the timeline: cover everything, whether you think it's important or not. That's up to the neuro to decide what is/isn't. DO NOT go into great detail. List the month and the year that a symptom started; ex.-June 2011-left leg went numb. Lasted 2 weeks. Make it out in order, but that's it.
From what she told me when she told me to make it out, they will read it if it is really brief like above but will disregard it if it is lengthy, like in a paragraph, or if you put other suggestive info in it. For example, if you state your bladder isn't working again because of the nerves not sending out signals, they will quickly disregard it. That is for them to decide. (Does any of that make sense?)
It was also suggested to me that I get a calendar and list my symptoms on there. When I get a new symptom, I should right it on the day of the week that it happened and nothing more. Then, when it goes away, write it on the calendar again. (I know, I am rambling, but this is what was suggested to me, so maybe it'll help you from here on out?) :-)
As far as the appointment goes, I would suggest that you let the neuro decide what is causing your symptoms. What I mean is, don't go in there and suggest that think you have this or that. Most times if you do that, they will quickly dismiss you as if you are having psychological problems instead. Really let them take the lead after you let them know what symptoms you are having.
I could go on and on, but I will let someone else give some suggestions too.
Sending big hugs of support your way!!!! Sarah