Dismissiveness

[LIW]

How many of us have been initially dismissed by neurologists who say our symptoms are:

[jibjen]

Hello,
I'm with you but have you beat with 20 lesions and same symptoms although my migraines get the blame....My most recent MRI showed 20 foci of  T2 and FLAIR hyperintensities taken in June...I have had cognitive issues and vision problems but eye exam says vision is 20/20..I also have tremors that come and go, spasms , zaps & zings, and numbness on my left side...since about August....All supposedly due to migraines.

[alicetinker]

Hi Jibjen

I just saw your post.

As I just mentioned neurological symtoms which accompany migraine resolve with the migraine. It stands to reason that neuro symptoms which you mention that do not resolve with the migraine are, imo, are something else.

Are your lesions demyelinating? Where are they located? Migraine does not cause demyelinating lesions.

As per the Limboland Toolkit you should consider getting your medical records because my personal opinion is you are being fobbed off. This is the exact term which was used by a neurologist I saw when they saw my health situation which has similarities to yours (cognitive problems, tremor, spasms, eye issues)-

"the other neurologists are fobbing you off by trying to blame your symtoms on migraines".

I felt like saying, 'ya THINK...'  ;)

Unfortunately this is very common and very, very wrong.

Good luck

[MrsAristotle]

Good post to Jibjen, I agree she is being fobbed off and i would pay to see my notes without a doubt.

[jibjen]

Hi  


I tried to teel my doc about it but I was shut down and told it was all migraine.

My MRI report stated possible demyelinating process and the lesions are located in supratentorial white matter, most predominantly in centrum semiovale and  high convexity subcortical white matter. (what does high convexity mean)

I have been trying to look these things up....

I am going to PCP next week for a discussion about who else to see.

Thanks for your support...alot of symptoms I never reported because i figured i was going for migraines but as they are occurring and learning more, I have been bringing them up and I feel like he thinks I am making it up....lesions don't lie do they..I actually discussed this before he even saw my MRI so how could I make it up ;o(

[supo_uk]

Hi Jibjen

Well I am going to add my two cents.The following is very important:

*********You cannot make yourself demyelinate***************

Tell the neuro that calmly when they continue to be obstructive then dump him and find another neuro.

Also remind him that migraines do NOT cause demyelinating lesions-calmly.

Using the word 'suggestive' is them being ridiculous and trying to cover their b*tts. It is either demyelinating or it isn't...

Amazing how many of us are left to figure this out for ourselves when we are sick and tired, isn't it?

Good luck

[jibjen]

Hi supo_uk

And Thanks....I am glad to know that migraines can't cause demyelinating lesions...which means stop blaming my migraines.....I have symptoms that don't even correspond with them...I have an appoint. with PCP next Thursday..Can't wait..I am asking him to refer me to someone and start ruling things out for me.

It's actually sad I had to go through my report and learn about it on my own......I should have gone to med school...what really p*&$#@ me off is how much I spend for health care and don't get it.

;o) Thanks a bunch