Hi Kris,
I have had gastroparesis since 2000, why i got it is the million dollar question..
I developed years after getting my gallbladder removed. I actually thot the gallbladder had grown back as its the same region of pain.. Starteed in 2000 incred pain after eating after doc do doc finally confirmed as gastroparesis.. Then started being inable to defacate myself started daily enemas.. then started blacking out and dropping after sweat tests diagnosis is autonomic neuropathy..
I have 5 half meals a day inc one shake for nutrition called ENSURE.. I dont make vit b anymore so have injectios ( might be worth getting a blood test checj b12 levels )
So ask away the questions.. Cut out as much fibre as you can for relief even just go liquids for a few days it sooo helps.
I have as little fibre as possible.. the pain level is dramatically less..
Chat anytime.. I have neurosurgery this thurs 25th in aus for a congneital cyst that continuallly fills up with fluid, shunt is being put iin.
I am now constantly being reviewed for MS all the time i suppose it can never be ruled out..
Helen
Mine is cervical stenosis. My disc bulge is the C5/6 level. I'm eager to speak with my neuro and the new neurosurgeon regarding a connection.
Thanks for the response, Sam!
Kristin, I'm sorry that you have this as well to contend with. And all those lovely foods that you can't eat....I could weep for you...
Re the vagus nerve. I read a while back (in relation to some brachial plexus nerve stuff that I have going on resulting directly from c-spine probs) that there is a causal link between c-spine nerve compression and e.g. vagus.
Forgive me, I don't rememberwhere your stenosis is...I wonder if it's all directly linked?
samxx
Fruits and veggies are absolutely healthy, but they contain a lot of fiber which moves slowly and tends to just sit in the stomach of those with gastroparesis. Same deal with whole grain.
I'm supposed to eat things that pass more quickly and that are low fiber and low fat. White bread, white rice, canned peaches, ground meats....so basically i can't eat anything healthy which annoys me to my very core!
I have a list of approved foods and a list of absolute nos. I guess I am lucky-some people with this disorder can tolerate liquids only and some have to have a feeding tube that bypasses the stomach entirely and goes straight into the intestines.
Oh, and I can have yogurt which I am now planning on living on! So that's good news.
And yes, Theresa-I have a dx, I am glad about that too. maybe this is the start of getting some real answers for me! I'll get used to the diet change.
Kristin
Hi kris,
wow, I am surprised about the diet, not surprised about diet helping but i thought veggies and some of those food were good for you...other than the foods he said NO too..did he tell you of any foods you should have more of to help digestion?Anyhting to help pass food along better?
the fullness and boating can be miserable feeling.
Jibs.
Kristin,
I looked it up..Wow??? I found some of the suspected causes really interesting.
Diabetes,Parkinson's,Scleroderma,Hypothyroidism.All cause nerve damage....????
Atleast you got a real dx for somthing....Maybe this will get you one step closer to finding the source of all your issues....
Try to think positive about the diet,Keep telling yourself that it is for a reason and will help you....Keep us posted...
Please Take Care, Theresa